Mono Patients get checked for POTS

Posted , 4 users are following.

Hello, last June I was diagnosed with mono. All last summer and into the fall I was fatigued, had brain fog, vision problems, anxiety, some depression symptoms etc. This past January I was tested again for Mono as my symptoms were not going away. It came back positive for "chronic mono".

I was sent to an infectious disease specialist who had worked at the mayo clinic for over 20 years and had recently moved to a hospital near me. After getting some background information on when the mono started, etc he had me lay on a table for a couple of minutes and stand up. When I stood up he listened to my heart rate and compared the results to when i was laying down.

My heart rate when up 30+ points. he diagnosed me with me with Postural orthostatic tachycardia syndrome. After doing some research I found that 25% of all pots patients remember having a horrible virus for a long period of time before getting pots. one of these viruses was mono.

if you have been experiencing symptoms of mono like fatigue, blurry vision, anxiety, pain, stomach problems, etc please ask your doctor about POTS.

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5 Replies

  • Posted

    hmm, I was in hospital for 6 weeks including intensive care because of extremely rare complications of mono. I'm not sure what my heart rate was before having it but I know since having it my heart rate is around 100- 112 while resting. but I've been with a cardiologist and everything came back fine

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  • Posted

    im sure you would add just because you have those symptoms it doesnt mean you have POTS. They are all also normal symptoms of glandular fever/mono. youll scare people! lol

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    • Posted

      The symptoms of both POTS and mono are similar but I was diagnosed with POTS based on the symptoms and heart rate and blood pressure changes with changing positions.

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    • Posted

      Hi G24,

      Really sorry to hear that you've been dealing with POTS, I hope so much this is something that is well managed and that you are doing okay at the moment.

      Just wanted you to know I was thinking about you and I'm believing that good health and better times are ahead for you - hang in there.

      Craig

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  • Posted

    Hi G24,

    So sorry to hear that you have been going through such an awful time after developing mono last year. I haven't heard of POTS, I just hope and pray that it is something that can be well treated and for good and full recovery ahead.

    Just a word of encouragement that my experience of mono was that the first year was truly truly awful, I struggled so much and felt so unwell and was so frightened and worried and struggled to get breakthrough for a long time. But my experience was that Year 2 was SO much easier, the intensity lifted and even though I was still a bit fragile thanks to God was able to get back to a normal level of activity and full health with time.

    I just really want to encourage you that there is still hope for full recovery for this - sometimes doctors can be very quick to write people off as 'chronic mono' or CFS or other things if things don't improve within 6 or 9 months, but just because the post viral phase of this thing is extended it doesn't mean in the vast majority of people that a full recovery won't be made with further time - so hang in there G24, I still believe that better times are ahead for you and just hope and pray so much that things improve and for God to give you a real breakthrough in your recovery over this coming period. I believe you are going to get well again, hang in there.

    Craig

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