Mono recovery story collection!!
Posted , 52 users are following.
Hey everyone,
Let's post some positive mono recovery stories so that they're all in one place to give people encouragement. I think there's a negative post bias that understandably happens where most people post when they're concerned, but not when they've recovered. This can give someone viewing the posts a pessimistic impression of recovery. On the other hand reading someone's recovery story, including the darkest parts of the illness, can give hope and aid in the healing process.
I'm still in recovery myself, so I don't have a story yet, but I invite you all to post your recovery story, or other stories you've found / been told.
Thanks!
-Jesse
8 likes, 282 replies
william96461 jesse27406
Posted
rest is required but constant rest doesnt improve you too much. Go for a walk but dont over do it
Ginger2020 william96461
Posted
ok. I did a 20 minute walk yesterday and last night I felt bad and couldnt get to sleep until 3a. i guess i need to do a 5 minute walk daily and work up to longer. thanks for the reply.
keishla20680 jesse27406
Edited
hi, guys I'm Keishla Garcia. I've been sick for two months now. I thought that I had sinus infection or allergies because my eyes were itching, cough and itchiness on my throat, fatigue, muscle pains, and headaches. I finally decided to go to the ER and he thought that I had COVID so he did the test including the mono test and the COVID test came back negative but my mono test came positive. since then I've been in a roller coaster. two days ago I thought that i was getting better and one of those mornings i woke up with my heart beating fast that ended in a panic attack in the ER. Yesterday at night i started to feel itchiness on my throat and coughing every 10 minutes, my head hurts, fast heart rate, pain all over my body specially on my lower legs and chills ( my temperature was 98-99.9. Well, today i got my supplements in the mail and as soon as opened the box i took my supplements to boost my immune system a few hours after I felt slightly better. I have 3 kids and since I got sick i haven't been able to spent time with them and that hurts my heart. my fiance had to take days off from work so he can take care of me and the kids. I can't even walk to the kitchen without my heart beating fast and my body out of energy is a horrible sensation. The sad part is that we have to move from our place becuse our lease ends in October and honestly we don't know how we are going to afford the deposit for a new place is my Fiance is not working . Reading you guys have been putting faith on me and I know that i have to be patient with the process. I just want to feel normal again.
gamble-huff jesse27406
Posted
Hi everyone,
These posts have been so reassuring! The most frustrating part of this illness has been the sheer complication--I was diagnosed with mono in 2016, and the symptoms dissipated within a few weeks. This time, symptoms have persisted--with very significant ebbs and flows---for over 6 months!!! I became sick with GF in March, had such a bad sore throat that my throat actually bled. Spleen enlargement and body aches persisted for a couple months thereafter, my gums bled, etc. Then, around late May, I started feeling much, much better--to the point where I was exercising quite frequently and without any problems. Then, in late June, the symptoms came back! Not nearly as severe, but sore throat, enlarged lymph nodes, and bad body aches. It took 3 months for these symptoms to improve to the point they have, and now the enlarged spleen is back, along with a (much milder) sore throat, and mild fibromyalgia, causing great discomfort and making it difficult for me to exercise. I am soooooo tired of this rollercoaster! If I hadn't had the experience of recovering near completely in May, this wouldn't be so discouraging. Has anyone had similar experiences? I just can't wait to be clear of this awful virus. It's been 7 months now since the initial infection---probably about 8 months if I count the mild sore throat and fatigue I had leading up to the acute infection. I'm seeing a lot of posts on here about breakthroughs at the 9 month mark, so I'm hoping to break through myself very soon!
He001 jesse27406
Posted
Hi, i've read many posts in this forum and I thought I would share my story and see if anyone has had symptoms similar to mine and is now recovered. I am around the 10 month mark and currently have daily headaches, extreme brain fog, fatigue, some mailaise, body aches, and muscle twitching. The brain fog is one of the most worrying things for me because I love to read and learn about things, but I can't do much of anything besides rest, watch tv and fight to get to the next day. Has anyone else had this weird foggy/dazed feeling be so intense for so long and eventually recovered?
jemma78005 jesse27406
Posted
hi there,
im a 19 year old girl thats just started uni this year at cardiff. I had covid in october and then glandular fever in november. i felt pretty much better about 6 weeks after getting first symptoms for mono but since the middle of december have been having long sore throats extreme tiredness, and the worst muscle/bone pains in my legs and arms - can hardly do any of my normal daily activities and keep googling all my symptoms and always assuming the worst ( because if my bone pain i kept researching what was causing it and it kept saying bone cancer which just made me worry even more) sometimes i wake up feeling awful and it may change throughout the day but sometimes i feel ok in the morning and then the muscle aches kick in and tiredness and gets worse, each day is becoming a battle! just wanted some reassurnace that all these symptoms are post mono and that i will get better in time and keep freaking out and worrying i have all these other diseases 😦 some support would be great particulary from those that experienced similar symptoms and just felt like they were never getting better!!
He001 jemma78005
Posted
i have had muscle pain, extreme fatigue, and other symptoms since having a viral infection, probably glandular fever (aka mono) many months ago. I have been tested by many specialists and had countless tests done, which all come back normal. If you had a serious disease like cancer, it would show in the basic blood work that any doctor would do, which you have probably had done so I wouldn't worry about that as long as you have talked to a doctor about your condition. Symptoms like yours can remain for a while after the illnesses you have had. I'm still having them like you many months after my illness
ren31 jesse27406
Posted
for any new people: please try lauricidin/monolaurin (do some research on it) it was the only thing that worked for me after 6 months of being sick. IT WILL HELP get your life back. its my personal miracle.
yes you will herx badly and for quite awhile (2 weeks to 4weeks) when you start taking it but it definitely works!! if you can work up to 3 scoops a day it will have you back to feeling pretty much 100%. only bad thing about it is i have found i have to keep having it to keep my symptoms away. i ran out and had ordered another but it didn't come for 5 days after i had ran out.. in those 5 days i felt everything slowly coming back, temperature, sore throat and neck, aching joints ect. got my new tub and by the end of that day i was good again. i don't care if i have to take it for the rest of my life i will be. i had been sick for six months before i started monolaurin/ lauricidin. i was in so much pain and a shadow of my former self.. i had even quit my job.. so i want to share this if i can help anyone even one person. i know how terrible, frightening and soul destroying this virus is. so please.. try it.. but remember you will herx and you will feel really bad for a little while, i know of people that give up it is that bad but if you can just put up with it for a few weeks and build up to 2 to 3 scoops it will be so worth it. suffer for a few more weeks so you don't have to suffer for years. i wish you well.. im so greatful to feel how i feel today.. looking back on days i was so disheartened, panicked and in pain i wanted to end my life. please try it.
NickO101 ren31
Posted
Hey Ren,
Do you know what Monolaurin scoops equate to? I'm currently on the pill Monolaurin form 990mg per pill and just wanted to know what your dosage was.
I hexed badly on my first round so didn't stick with it but willing to give it another go!
Cheers
DomD jesse27406
Edited
hey everyone im sorry for everyone that has under gone and is going through this illness. my name is dominic and im 19 i decided to join this community because i myself am fighting this debilatating disease. its been 7 months since i got diagnosed with ebv and ive been a completely different person. everyday i wake up feeling the exact same tired, fatigue weak, i just dont want to get out of bed i drag myself everyday to work and through the day. if i didnt work for my dad i would be fired by know. i look back at pics of my old active self not even reconigizing that that is me. i feel like my better days were in the past and that this is how im going to feel forever. i have gotten better a bit but for the most part the fatigue is killing me i sleep 9 plus hours a day it would be more but i have work so i have to get up. my eyes are puffy and body hurts everyday body aches my bones and joints. if i do to much one day the next day i feel even worse. i know alot of you guys have had mono a while back, did you guys make a full recovery. how long did it take ? do you have any recomendations or tips? at this point im down to try anything ive already eat very healthy im a health freak so i eat very clean, eggs,meats sprouted grains , veggies, kefir, yogurt, raw honey, fish pastured raised butter, olive oil, fruit etc and i used to workout 4 days a week before mono, everybody knew me as the most energetic person and now i feel lost. ive tired monolaurin, vit D, l-lysine eating garlic all daily, and taking cold showers nothing seems to help much.
Sorry for the spelling errors never was good at spelling
Sam5706 DomD
Posted
I had mono 2yrs ago. I got better only to get very sick again a few months later. got better again and got sick again. better again and sick again. I have now been sick 3 months mostly bedbound.
for me it has turned into chronic fatigue syndrome 😦
NickO101 DomD
Posted
Hey Dominique,
I'm in exactly the same boat as you, 30 years old and super active/fit before I got this, I'm currently 4 months in. I know a few who no longer visit this forum have recovered. Maybe look at the username YoungBoy who got mono and is of similar age to you. He no longer posts but has recovered.
Keep prioritising rest and not over exerting yourself as it will just make you relapse. Many have mentioned the recovery process is a zigzag, I climbed a mountain, played basketball, ran and weightlifted not realizing that I had EBV/CMV.
Keep us posted how your tracking would be good to get this community going again.
Nick
katie43045 jesse27406
Posted
Hello there,
This is my first post on the forum and I just would like to say how incredibly thankful I am for this thread and the voices on it. I became ill with mono/EBV December 18, 2020 and it has been the most challenging six months of my life. In the midst of the pandemic, I had no idea what I had and when I got a diagnosis of mono, I was floored. The myriad of symptoms I have (and continue to have- although their severity is largely lessening) is mind boggling. I needed to take considerable time off of work and then teach remotely for the remainder of the year. I am not sure whether or not I will be able to return to teaching in the fall. Anyway, I recognize this thread is older, but I want those of you who posted on here to know that you helped me considerably in the past six months.
Craig- I sought to message you, but cannot seem to figure out the function on this forum to do so. I want to thank you, in particular, for your constant voice of hope and encouragement.
How are each of you doing now? Looking back, what would you say to someone who is currently struggling?
Katie
Tinabear jesse27406
Edited
wow this post was from a few years ago. @jesse27406 how are you now?
i had glandular fever / mono in 2015 (early 30s) and if affected my liver at the time, had low grade constant fever. then extremely bad swollen glands for a few days. spleen was also inflamed - would hurt after id eat a big meal. slowly the spleen and liver returned to normal (over a month and a bit) the symptoms to go last were fatigue and night sweats. i stayed in bed for a month straight to preserve my strength. symptoms started in early jan (i think) by feb i was fine.
in 2017 /2018 i went through high stress and after a cold some of the mono symptoms returned - fatigue and night sweats. fatigue resolved in 1-2 months, night sweats came on and off for probably more than a year. it eventually depended on stress, sleeping and before my periods.
im totally healthy now and have been in america for a while - my health always improves here. prob due to the sun!
im a bit paranoid and concerned about getting the covid vaccine because am worried the immune response might trigger mono symptoms to return. has anyone here who have suffered from bad mono symptoms got the vaccine and been ok?
anna_g Tinabear
Posted
Hi there,
I got the vaccine (Sputnik V) when I still had some symptoms (4th month or about). Felt a bit worse for about one week, but now I'm fine. Wisdom tooth removal affected me personally a lot severer.