Mood changes with GCA and PMR on Prednisolone are well documented...
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but what causes them?
Is it due to a lack of clear diagnosis and treatment? Is it due to threatening disability that causes anxiety and depression? Is it poor sleep and tiredness which is attributed to Prednisolone? Is it the difficulty of a definite dosage titration to prevent ups and downs of the illness process? Is it the doctors who can be inadequate, scornful or rude? Is it that the action of the prednisolone itself causes increased stress responses which have a knock on effect?
If you have any ideas about this, it is useful to share them because many of the above, and other suggestions equally as possible, can be addressed.
Your comments will help with an article I am writing for a magazine article.
2 likes, 39 replies
Guest misdiagnose
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misdiagnose Guest
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I take a couple of deep breaths when I feel emotionally tense and let the air out, releasing tension in mind and body telling myself that, should I die, that the legacy of sadness that people will feel will be all the more painful if I have expressed m frustration and resentment towards them, the dearest and closest people to me. I have found meditation helps, as does prayer, and asking friends to pray for me (even though I and they are not religious). At least it lets them know how desperate I am. Soft music also helps to keep me calm. I am a type 'A', the stressful kind, able to get a huge amount done, good in emergencies, etc., often laughing and going dancing, but running on empty now. I have no reserves of strength, physically or emotionally, and do not recognise myself or my new life as an invalide. Many people are angry with life that this has happened to them. I understand that. I just wish that people would listen to me, without judging me, especially doctors, who are so quick to be impatient and arrogant, and wrong! Maybe there is something about giant cell arteritis, the tension in the carotid, temple and cranial arteries which produces an inner tension. Prednisolone is known to cause mood changes, even for the most laid back and contented of characters!
elizabeth20640 Guest
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misdiagnose elizabeth20640
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elizabeth20640 misdiagnose
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The question on thrush was just thrown in there,
misdiagnose elizabeth20640
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constance.de misdiagnose
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I personally have not really had any real difficulties with mood changes (except for the odd weap when feeling sorry for myself when the pain/fatigue was at its worse)! I have always been 'afraid' of Pred, but what else is there?
Good luck with your article.
misdiagnose constance.de
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Nefret misdiagnose
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constance.de Nefret
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misdiagnose Nefret
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Nefret constance.de
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My husband thought it was hilarious, he'd never seen me off my head in 40+ years. I couldn't sit still and was serenading the cat, next door's dogs (not to mention the owners). At the time we had an usually long flight of stairs and I took to running up them and then running down backwards................oh, the memories.
jean_b Nefret
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misdiagnose Nefret
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misdiagnose jean_b
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Nefret jean_b
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That's still not high compared to steroid intake for other conditions where 140mg and higher is commonly used.
constance.de Nefret
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Coooo.... - and I moan about still being on 6mg! I hide my head in shame.