More about alendronic acid
Posted , 14 users are following.
Hi all,
Rather than repeat things I have posted before - which anyway would miss the contributions from others - I thought I'd put this under a new heading so you can look for yourselves.
If you type \"alendonic acid side effects\" into the search box at the top of the page and then choose the \"arthritic/bone/muscle\" selection which says there are 12 hits (I think) you will find all the posts we've had mentioning alendronic acid and problems with it. I have discussed the reasons why doctors are so keen we should take it (in my opinion, pressure from big pharma) and several people have reported having muscle and joint pain when taking it which has resolved once they stopped taking it.
I feel the bottom line has to be that, whatever the average GP (or rheumatologist) says, it has become a controversial drug which can be of use in certain circumstances (established osteoporosis) but which has been introduced as something which can be used to prevent something without any thought of the wider picture when used in very large numbers of people over a long period of time. Whilst uncomplicated and proven osteoporosis may well be a field where it should be used, in the presence of certain other diseases the situation can be very different. There is a parallel situation with statins. There is no doubt that very high cholesterol levels pose a risk - but the widespread use of statins to lower cholesterol levels that are only slightly raised may also have other effects where specific concommitant diseases are present. They too may cause muscle problems and some have been associated with the subsequent appearance of PMR.
As far as I know, there are no long term, large scale trials looking for interactions with other ailments - and whilst the clinical trials usually pick up the most serious side-effects, the numbers are relatively small. There is a scheme in place for reporting what are called \"adverse events\" after a drug has been approved but it is well known that 1) doctors don't go to the lengths of filling in the reports and sending them in and 2) all too often the patient is not taken seriously when they say \"this medicine is making me ill\". Just think how difficult some of us have found it to find anyone to take them seriously about PMR!
Enjoy your reading ladies (and gents if that applies) - I hope it answers a few of the questions that have surfaced over the last few days. If not - ask again and I'll go away and look for specifics :lol:
EileenH
1 like, 103 replies
fiftiesgirl
Posted
Margherita
Posted
EileenH
Posted
I could go on and on and on - but I won't :wink: :lol:
Back to basics, I say - cook from scratch, then you know exactly what is in what you put in your mouth. There was a comment on Sky News this morning about buying packet mixes for pancakes - you still usually have to add the egg and the milk - so why not just buy flour?? At half the price.
EileenH
beev
Posted
I always eat natural foods - never the horrible convenience stuff - for the reasons you say and becasue I actually don't like the taste of them.
I do, however, in my quest to lose weight, use quite a lot of sweetener (Splenda) on things like cereal, natural yoghurt , raspberries etc (as I prefer to add fruit to natural instead of buying a fruit yoghurt). Is this habit working AGAINST my weight loss? My weight is mainly around my middle!!
Beev
EileenH
Posted
I think if you started to consciously use less sugar/sweetener on things, bit by bit you could wean yourself off sweeteners altogether. Think of the money you could save! We rarely eat puddings - and if I do it is something like the Gu chocolate pots. No point scrimping! I've mentioned a couple of times recently that your tastebuds renew themselves every 6 weeks or so - so you can go cold turkey and suffer for 6 weeks and the job is done! We have this suspicion that being at Uni was the thing that disposed of our sugar habit! We used to go to each other's rooms after dinner for coffee - if the host had sugar available, everyone took sugar - if they didn't, they tended not to bother or, if desperate, brought their own. Now there was a way to save the pennies!
:choc: :cupcake:
EileenH
beev
Posted
Yes - I must have developed a sweet tooth - I remember eating loads of biscuits into the night at Uni - so maybe that accounts for it?!
I think I will try to do as you say and gradually wean off. I dont take sweetener in tea or coffee.
But, is the sweetener stopping from losing weight do you think cos of the insulin thing you described??
By the way, I don't think you are strange! You like red wine and chocolate, so how could you be. :lol:
Beev
EileenH
Posted
On the bright side though - do you think we could develop a chocolate and red wine diet??? :lol:
EileenH
arthur36
Posted
MrsO-UK_Surrey
Posted
There is a lot of debate going on about Alendronic Acid on quite a few threads at the moment, As with most drugs, it seems that many people can take it without any problems whilst others really suffer.
Many of us on steroids for PMR are prescribed AA automatically in order to protect our bones from thinning as a side effect of the steroids. However, many of us on steroids have been lucky and found that we don't suffer from this side effect - I am one of those who started on 40mgs Prednisolone gradually tapering over 5.5 years and reached zero Pred with only a tiny amount of bone thinning (probably down to advancing years!) in spite of never taking AA.
Importantly, anyone being prescribed long-term steroids should have a DEXA scan carried out at the outset to get a baseline reading of the state of their bones and if there is no sign of bone thinning then they don't need AA at this time. The DEXA should then be repeated as if there is going to be any bone thinning as a result of the steroids then it generally shows after the first few months of treatment. The National Osteoporosis Society helpline will answer any questions you may have, and they have some very useful information about AA on their website.
As for ballroom, salsa and latin dancing at 87....wow! I thought my 87-year-old aunt was the only one on the planet doing that, plus her 3x weekly gym and swimming sessions. I hope better days are just around the corner for you, Arthur, and that you'll be 'tripping the light fantastic' again soon.
MrsO-UK_Surrey
Posted
arthur36
Posted