More confusion and questions
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Hi, I posted last week about my positive RF and high CCP labs. I have an apt with a specialist in Bangkok, where I live, for Aug. 5, where I will get scans. I am trying to prepare myself mentally for all of this. My main concern right now are the drugs. Being that I have no pain or stiffness or swelling, in less I drink alcohol then I'm swollen all over for days and stiff in the legs from my butt to my feet until I sweat it out. I run and lift weights and have the little nagging pain here and there which is normal enough. If I am a symptomatic and doe have this disease are mess absolutely necessary? I understand they are to help with stopping the damage to joints and pain. Could I have joint damage and not feel it? Like most people new to this, the drugs seem horribly bad for you. Are there any drugs that don't completely knock you down? If the inflammation is not present in bloodwork do you need to take these drugs? Any advice or stories about the earliest onset of RA symptoms and drugs that have not wrecked you are really needed. Thank you.
2 likes, 43 replies
tony09890 firesign90
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sherry29159 tony09890
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Light sherry29159
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I would think all mortals have access to the same drugs. No special drugs for the high and mighty, though some may be more affordable for them.
For some people the RA is very painful in the beginning and once it gets under control the pain subsides. It's also possible that it goes into remission for long periods when there's no pain. It can go for 18 years and then spring up again.
In KR's case (and possible Bill Nighy – have you noticed his hands?), likely they didn't get treatment soon enough and the disfigurement set in. Once it sets in, even if the pain goes and the RA goes into remission, the joints can't recover.
That's why doctors suggest you start on the heavy drugs as soon as possible.
sherry29159 Light
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When I referred to the drugs KR might be on I was being sarcastic as he is renowned for his drug taking! Just thought he may have one that works better. Many get great relief from 'the weed' I can't afford that.
sherry29159 Light
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Light sherry29159
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Oh, didn't get the joke, sorry. Not very familiar with KR but, drugs, yes... Immortal? He probably is, as is BN, as they're trapped forever on celluloid and vinyl.
Are you in the UK?
As far as I know, 'the weed' is available on the health service now if you can prove you want the cannabis oil for pain relief. Or even if you can't, possibly.
Light sherry29159
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I've been moderated to purgatory. No idea why!
Maybe it was the mention of innocent 'weed' oil that now is available on the NHS for pain relief. Let's see if they moderate this away too!
sherry29159 Light
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Haha! Is that true? How come I didn't know. Would it help RA? And tell me is Rituximab working for you?
sherry29159 Light
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I am so convinced rituximab won't work for me my sister asked what percentage it was successful for. Any idea?
Light sherry29159
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And yes, that stuff helps with pain relief. One of the safest actually. Ask your GP.
sherry29159 Light
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Light sherry29159
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Yes, you should be feeling something after six weeks. They say between 4 & six. But you may be a late starter.
Don'tt give up hope!
sherry29159 Light
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I see my gp tomorrow and cannibis oil will be broached but I can anticipate her reaction already. So why isn't it more well known? Yes in UK.
Light sherry29159
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If it's not too late now, mention its uses for MS patients. It's in the context of MS that I heard about it. At least six yars ago, now.
Good luck!
Light
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