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I have had TN diagnosed by GP's and atypical facial pain diagnosed by a Pain specialist. I use Tegretal and Ativan, I do just okay , found a level i can tolerate for pain but the tegretal makes me off ( sort of drunkish). Now I have finally been to a Neurologist and he has indicated that he feels I have just atypical facial pain because my pain is in more than one place on the left side of my face. He says TN is only 1 spot. I have pain in the left ear, under the left eye, down the sinus cavity and in the teeth and jaw of the left side. it can be severe pain that drops me to my knees if I am not on tegretol. Does anyone else have TN that appears as pain in more than place in the face.
The MRI is not showing anything. The neurologist is referring me to a neuro surgeon now. I am confused and scare now.
I hve not been able to work the whole time I have been in this pain, about 18 months now. I dont know how anyone works during this.
My TN comes and goes with huge pain, atypical facial pain stays all the time,never lets up but is not the great pain of TN, slightly lesser. Tegretol works on both but as I indicated with side effects.
Anyones input please.
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