More PE's

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I ha them two years ago and was on Riveroxoban for six months. I am not a text book case apparently but have been feeling unwell for three months finally go did a d dimer and it was 700, admitted there and then and am now on Apixoban for life. This is life changing and I hate it. Tried some gardening felt sick and breathless, had wine and loved it but now on water, can I not have a glass of wine with my dinner

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13 Replies

  • Posted

    Welcome to my world. 

    Apixaban for life too but there seems to be an issue about dosage still to be sorted out.

    ever since taking this i have been having intermittent nausea and lethargy.

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  • Posted

    No reason why your drinking habits should change because you had a P.E and are on anticoags - mine didn't and I'd have a few beers during the week and a bottle or two of wine most w/ends  with no ill effects - ok maybe a couple of hangovers , but just dont over do it and fall over and hurt yourself as stopping the bleeding  might be a prob wink 

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  • Posted

    How come they didn't put you back in riiveroxaban least you can have your wine on that . I have had bilateral PE twice the second time four weeks after finishing medication after being in it 6 months they still put me back on same drug tho

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    • Posted

      Hi Tina

      My Name is Jhoana haD PE in the left

      Lungs how comes that ur PE cameback

      After 4 weeks now i am really scared!

      How did U get PE? Can i ask how old und are?

      I am 22 year old and have 2 years old daughter and now i am scared to take off my Medication.

      Because i saw ur's cameback After 4 weeks

      I am on Xarelto

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    • Posted

      Ive been off of my apixaban whitch is eliquis for a couple days and im worried. My doctor told me i can take baby asprin. But im still scared.
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  • Posted

    Do you have a blood clotting disorder?
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    • Posted

      Do they know whats causing you to have clots? Because im 35 and they are not 100% on what caused mine but i was cleared to atop the apixaban but im afraid to because i dont want to get abother clot. I emailed my doctor to ask if i can stay on it till i go back to work full time next week.
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  • Posted

    Hi Maggie

    I am on Apixaban and have right heart strain due to the clots and am due for more tests next week.

    The cardiologist and respiratory consultant have both said that it is fine for me to have a glass of wine, at times I do feel like one but am nervous about having one!

    Haven't had a glass of wine since November...

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