More questions from a newbie :)

Posted , 8 users are following.

Sorry for all of my posts...I'm reading a lot and just trying to sort through the information. I'm in the beginning of my journey - diagnosed a few months ago, clitoris starting to shrink/lose sensation and I'm just panicked. I keep thinking I'm used to this idea, then I read more and can't believe what I bad dream this feels like... I am lucky to not be progressed/in pain/suffering yet but I am desperate to at least try to halt this where it is.

From my reading on this site, my plan is to get a sitz bath and mix borax and baking soda in warm water and sit for 20 minutes each night. I got some Emu oil and will apply that every morning. Full time job in an office, so I don't feel like there's too much I can do during the day...

There are so many variations on frequency, types of oils used, mixtures, etc, it's hard to know what to do. Since shrinkage is my only symptom at this point (and a tiny bit of discoloration), I don't have much improvements to see, so trial and error doesn't seem like it will reveal much.

Wanted people's thoughts on my routine. I also put a call into my gyno to see if she knows of a specialist although I don't have my hopes up on that one. Haven't been eating dairy for months, but I am also following an autoimmune protocol diet now, changing to all-natural products, etc. 

Thanks for your patience and advice, ladies!

Butterfly

1 like, 21 replies

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  • Posted

    Are you using hormone cream? I don't see any shrinking. If anything everything is plumping up. I am using both (a milder) steroid for the LS and estradiol for the AV.  My gyn said In my case the low estrogen brought on the LS, but I have read it is one theory as to its cause. How many of you who have it are using hormone cream as well as a steroid? Just wondering if it would help. If not have you had estrogen levels checked?

    • Posted

      No, I haven’t seen my gyn since the diagnosis in August and she just gave me a topical steroid (clob). I left her a message yesterday to call me ( she hasn’t called yet) but I don’t get the sense that she knows much about it since she downplayed it and sent me on my merry way 

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