Morning pain
Posted , 11 users are following.
Have s question for you suffers out there, especially men. After 7 months of having this condition, I seem to have developed all kinds of morning pains when I wake up. They might be in the hands, mid back legs, and ribs. I am pretty sure the are PMR related, because they tend to go away, or at least get better, by mid-morning. I take my pred at about 3AM.
Just curious because this pain presentation is very different from what I first experienced, which was bad him and leg pain, which has gotten much better.
0 likes, 7 replies
1951grumpa Carnut
Posted
Hello carnut, it sounds like a question for your dr sooner than later. Have you reduced your prednisone too fast or far? Far being past where your inflamation isn't controlled any longer. I have had many flrares where the pains would return especially when i went below 8.5mg . finally down to 1 mg after 7.5 years. I hope you get to the bottom of your issuses.
Anhaga Carnut
Posted
You might, of course, have another condition. I have osteoarthritis, and early level of pred dose helped that. But now at a low dose I'm aware of the pain of OA which is not unlike what you are describing - not saying this is what you have, of course. I'm pretty sure that's what it is because a lot, although not all, of my residual pain goes away if I need to take another med, like aspirin or tylenol, for a headache.
Carnut Anhaga
Posted
No, its not osteoarthritis. X-rays of hips sow none and knees are good. probably not enough pred at this time.
Anhaga Carnut
Posted
Well, that's good. i have arthritis in my hands, feet and spine, including neck and lumbar spine. Apparently I have a little in my knees, discovered when I had a tibial plateau fracture. But when I came down with PMR I had such hip pain I thought I'd better get in line for a hip replacement. X-rays showed no OA in hips! It was all referred pain from my spine, and as PMR has improved, so has this hip pain. I guess that's a convoluted way of saying that clear joints in one area doesn't mean whole body is clear. I'm not wishing OA on you, just suggesting it might be something other than PMR. But if you stop tapering for a while to see if it improves, or even increase slightly, you'll have your answer!
EileenH Carnut
Posted
Is the diagnosis of PMR pretty certain?
TheRaven Carnut
Posted
I've been on the PMR circuit approaching 2-1/2 years now but can't say I've had leg or rib pain as you've described. After 8-12 months I did develop pain/tenderness of the hand muscles - not the joints. As I've reduced the prednisone dose so has the hand tenderness. I'm now at 7.5 mg, working towards 7 mg and the only time I really notice the hand tenderness anymore is when I first start the next reduction. After a few days to a week it fades away again. I'm doing a split dose - 7a.m./11p.m.
diana21296 TheRaven
Posted
I had this pain but only in right wrist on reduction. Now on 5.5mg and get it no more luckily.