morning restlessness

I truly believe a lot of this is due to high anxiety. I don’t sleep all night and never thought about sleeping medication but I wake up shaky and anxious but I have no idea what I’m anxious about. I ask myself is it because I’m worried about breaking out in hives, or actually how its a real struggle most days with fatigue that I beat myself up that I can’t keep up with everyone else mentally. In which I mean that most days I feel like I’m so tired I’m away with the fairies and that adds huge amounts of pressure that I will fall behind or miss something important in my work. To be honest I couldn’t put my finger on it and it’s something I would like to discuss with my doctor but feel I can’t. It’s hard enough trying to get them to actually truly understand what we have and go through without then telling them how I’m feeling. Maybe it’s my doctor and she has said she has no knowledge of this illness so she can’t really understand. I don’t know about you but it’s just go see the dermatologist have this and that to cure the rash but it’s so much more than that. I’m sorry to hear how you are feeling, as this must make you more anxious knowing you have to face another day feeling like you do. I would try and speek to your doctor/ consultant as see if they have also had a patient with the same symtons. I’m praying this illness gets more recognised and the huge impact it has on everyday life. I think it’s amazing for people that are able to work, but I will be honest this illness as a whole has knocked me off my feet. Please don’t let this illness rule your life as I have become a recluse in my own home and don’t really go out of the door. Why? Again like yourself I don’t know. 

When people think of trauma we think of a huge incident, but it’s something that can be simple but impacted on your life. Only a few people including myself have had this. I’m wondering if the body does something to itself to cause this.  

I get the restless and crampy leg thing but at night. It usually happens at the same time as an outbreak of intensely itchy hives. I tend to feel feverish and flu-y at the same time and it causes insomnia as I toss, turn and itch all night. For me, more Gabapentin usually reduces it enough to sleep eventually. But then coming out of the Gabapentin and especially Doxepin fog can be very hard in the morning and itself causes stress. Are you drinking a lot of coffee in the morning to help you wake up? That will cause nervousness, anxiety and restlessness. Gabapentin and especially Doxepin will make it harder to concentrate too, which I found causes me stress at work and in my general life. I've noticed when Gabapentin starts to wear off I can start to feel anxious too, which makes sense as it does reduce anxiety.

My wife had it during the third trimester of pregnancy. She found cutting out caffeine completely helped. She just had her folate (iron) levels tested and they were on the low-side. It is a symptom of anemia. She also found Yoga helped and also not getting herself too tired. Tai chi would probably help too.

Yup, it was around zero degrees celsius here today and even in gloves my whole thumb and my fingers up to my knuckles started to swell and turn lobster coloured. After 20 minutes, they were really starting to hurt. Had to get in before they got hivey, as that comes next. When I looked in the mirror in the bathroom, I had a big owl-shaped pattern of redness around my cheekbones and forehead from the cold. That's the only problem with getting away from the cold for a bit. When you come back, you are more sensitive. We go back to Spain again on Monday, can't wait. Wish I didn't have to come back to the UK before March. 

By the way, I also realised since earlier that my feet and hands also go numb very easily, especially the little finger and toes.