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Morning struggle!

Posted , 12 users are following.

kelly75312
kelly75312

Hi, haven’t been on here for a little while. 

I’m currently entering month 7 of GF. Wondered if anyone else is/has experiencing the same...

Every morning when I wake up it literally feels as if I’ve been hit by a bus, my body aches SO much. Once up and dressed it eases off a little... 

although, Today I feel like I’ve ran a marathon- my legs ache so much, but yet I haven’t done anything!

Also my glands under my jaw are still huge, and in my neck.  After eating, my glands under my jaw are so painful it’s even uncomfortable to talk! Did anyone else experience this?

Thanks

0 likes, 15 replies

15 Replies

  • catchthebus
    catchthebus kelly75312

    Posted

    Hey, yeah, I'm 13 months in and my lymph nodes still hurt a lot. It's very slowly getting better.

  • brent_83487
    brent_83487 kelly75312

    Posted

    I went through the same thing for a while. I felt terrible in the morning and better in the afternoon. I was also around 7 or 8 months at the time. Rest as much as you can. I had to work through this illness. I have suffered greatly because not a lot of time off.
  • will_53771
    will_53771 kelly75312

    Posted

    My glands were only enlarged for a couple of weeks but I have been experiencing the aches you describe. This is month 5 for me and I’m currently lying in bed with my legs feeling like lead, it’s horrible.
  • ebvreactivated
    ebvreactivated kelly75312

    Posted

    It is almost a year for me. Lymph nodes hurt so much under the jaw. And lingual tonsils hurt when I swollow food. I have on and off pain inside the throat, it isalways red and inflamed. Today my gums hurt too. They are receding too and I am young for that. I’m so depressed as I don’t know if this is mono. 

    Have you all had the mono test? If yes when? I had the EBV test a week ago and found out that I had the virusin the past.  but it’s not the same as Mono test, isn’t it? I had the Mono test last year and  it was negative. 

    • vancityraincity
      vancityraincity ebvreactivated

      Posted

      Hey Christine just want to reach out and tell you that my tests also showed past mono but my symptoms are all very comparative with EBV mono. It’s 5 months for me.. so depressing and stressful when you haven’t had a confirmed diagnosis of active mono sad 

      Hugs. 

      I also had gum pain ps

    • ebvreactivated
      ebvreactivated vancityraincity

      Posted

      Do you mind if I ask you how old you are? I cannot believe how my body gets weaker. I cannot take care of my child who wants my attention all the time. For I year he asks me if I’m sick. This is hard not only me but my family too. 

      I don’t get the difference between ebv and mono test...

      I am going to see a periodontist in 2 days for painful sore gums. I developed more cavities in 1 year than in all my life. 

      Take care, I hope to hear good news soon from you and other. If not we can still vent and encourage each other

    • vancityraincity
      vancityraincity ebvreactivated

      Posted

      Hi Christine I am 26.. 

      EBV is the name of the virus, mono is just the collection of symptoms .. or name for all the symptoms. So EBV causes mono (the symptoms). 

      Mono can also be caused by other viruses, one of them bring CMV. 

      Hope that helps. 

  • don86
    don86 kelly75312

    Posted

    The mornings are rough. I start to feel better after lunch. I'm almost at month 5. Very up and down. Mostly down. 

  • Rbhtx
    Rbhtx kelly75312

    Posted

    Similar to everyone here, mornings are very rough and I still require lots of sleep. I don’t start my day until 1-2 pm and feel my best in the evenings. I’m 5 months in. 
  • craig07920
    craig07920 kelly75312

    Posted

    Hi Kelly,

    Yes I remember feeling this way in the mornings when going through the virus, I think this definitely is normal for the virus, I constantly felt like I had been doing heavy exercise in my muscles / joints even though I hadn't! Just want to reassure you that after 7 months I as feeling the same but by 10 months I really started to make progress towards a full recovery. I do believe you have been through the worst of this Kelly even though still having these symptoms at the moment - I had a bad lapse about 8-9 months with joint pain and muscle aches, but it actually proved to be the start of recovery looking back, as if it was one final push before my body finally got the virus under control. I also had the sore lymph nodes in my neck, this does go away too, hang in there Kelly you WILL get there even though it's taken time.

    Craig

     

  • lisa29739
    lisa29739 kelly75312

    Posted

    Hey Kelly! Geez I could have written this. My worst symptom is morning fatigue/muscle pain weakness and numbness. It’s always so bad when I wake up! I’ve gone nuts thinking I have fibromyalgia or CFS or MS.  It does ease a bit as I get up but it still lingers throughout the day. 

    It’s like sleeping activates it. 

    Im at 8.5 months. I luckily have not had gland problems. Just fatigue and muscle pain and sometimes that horrible flu feeling. 

    • kelly75312
      kelly75312 lisa29739

      Posted

      Hi Lisa!

      Yep, me too! I was convinced for ages I have MS! it’s so reassuring to hear other people are experiencing the same. 

      For a month or two I really struggled with health anxiety, thankfully I’m much more relaxed about new ‘aches and pains’ now!

      Feels like a bloody lifetime this illness! Can’t wait to see the back of it!!

      Thanks all for replying!😊

    • lisa29739
      lisa29739 kelly75312

      Posted

      Thank god the anxiety went away! I was telling my mom that was the scariest part. Like an alien took over my body. 

      I’m right there with you. I can’t wait for this to be gone!! I did walk 14 city blocks a few days ago and didn’t keel over so, progress? smile

      Cheers to being over the hump and seeing some major improvements in the coming months! 

  • holly25225
    holly25225 kelly75312

    Posted

    I’m one month in and completely in the thick of the symptoms. I definitely feel much worse in the morning and my eyes are so so puffy and swollen. 

    I’d like to ask how your symptoms progressed.. like what did you notice first and how long before initial symptoms began to settle?

    • craig07920
      craig07920 holly25225

      Posted

      There with you too Lisa and Holly....hang in there guys better times are ahead for you both I totally believe that, may not seem that way now but when this is through you will be even stronger than you were before and feel liberated.

      Craig

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