Most Probably going to be COPD- so worried.
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Hi, my name is Rachael and I'm 38 and a mother of two kids 6 and 8.
I'm writing this through buckets of tears and will admit I'm not such a strong person emotionally. I'm just terrified to be honest and just need a little support.Some Background- six weeks ago, maybe i had mild broncitis i don't know, i went out for a few drinks ( usually i'm tee- total due to Miniere's disease) with friends, but generally i felt fine. Bit of a hangover the next day, but the day after that ,Wham! Full blown bacterial pneumoni in right lung and in Hospital for a week( i'm english but live in Holland) the dr's kept asking me if I'd had lung problems before because the type of bacteria they found Heamophilis influenza was usually just found in patients with COPD. I was a bit shocked ,i gave up smoking ten years ago after smoking for ten years, i'm quite fit and a healthy weight- maybe a bit under. Never had any lung problems before. Fast foward 4 week, i go back to the consultant, he says , pneumonia is getting better, but after giving him another sputum sample as i'm still coughing up green stuff he says he'll ring me in a week. So, Xmas eve i speak to him over the phone, he says the Heamophilis Bac is still there and now the are looking down the road of COPD- maybe Chronic Broncitis. I'm not coughing hardly, just to get this bit of stuff up. Sometimes my breastbone feels a bit tight. Lung fuction tests are at the end of Jan. Having read everything and his words, he's probably right and i'm petrified, my kids are so young, i kn people's experiences are different- but how many 'useful' years do i have left- generally? Thanks in advance, off to take the dog for a walk and pull myself together!!
0 likes, 14 replies
wayne63 rachael71638
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Nanny1086 rachael71638
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I'm on medication ,have been on ,ventalin inhaler,seratide inhaler ,and tiotroium inhaler, I also sometimes have to use my nebuliser ,just stronger than the inhalers, you will have used this in hospital, I got my own to use at home as and when I need something a bit stronger, but I only use it if my chest is bad, I have strand by antibiotics so I can start then as soon as I start an infection, and the occasional steroid course, ,and that's about it, my advise would be, ask for scan of your chest,
and try not to worry too much ,take your medication regularly ,rest as much as possible, and that's about all I can say !I'll be back at the gym next Tuesday !as I too have had a bad virus and chest infection, good luck ,
underseadog rachael71638
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Dont panic yet... you dont have a diagnosis and so you may be worrying needlessly..
We all get sick and symptoms can be from many different things.. You will have to go through some tests which will narrow the field and eventually you will have an answer.. Also COPD comes in many forms and severity and so there is no big deal yet as COPD usually comes on slowly and not in a month or so (so from what you've said it seems less likely, though not impossible)...
You need to relax and keep walking the dog both for your Cardio-Vascular health and relaxation..
Your doctor seems to be on the ball and your general health is 'fit' from what you have said... As I have said in other threads Drugs and health care in general is much better than it was...
I can only see that this Bacteria are also found in COPD but not exclusively..!
really... go through the process that the Doc advises and find the earlieast appointment that you can but COPD is only an umberella term for a problem with breathing... find out what it is and then there will be a way forward... the Kids still have a mum and dont let this possibile outcome mar your life...
Nanny1086 underseadog
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hanb rachael71638
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If it is COPD (don't forget the other possibilities like bronchitis, treatable), it sounds like it has been found early, which can improve your chances of effective treatment to slow down the effects.
The fact you're still able to care for your children and walk your dog sounds very favourable in itself.
Also, COPD is a 'blanket' diagnosis, an umbrella, if you will, that covers many more specific diagnoses. Much of which isn't ascertained before PM.
This is by no means the end of the road for you.
I also understand what it is to live with anxiety, whatever the cause, and I have found that CBT Meditation, Mindfulness, yoga breathing, and visualisation are my best friends in these times. There are many free online services for all of the above, but should you require any help, please feel free to ask - I can offer you links to sites I have found most helpful, but between Google and YouTube, it's fairly easy to access.
Love, light and hugs, hanb
sandy58386 rachael71638
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Nanny1086 sandy58386
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I agree that the faster you get tested in full and get the correct diagnosis is important ,but I have found that a couple of weeks waiting time isn't that bad, if you've got a good GP and your medication,and you can do a bit walking etc, you are you are young ,and hopefully a non smoker ( if you do smoke stop NOW ) ,that's the best advise I was given ,,,,good luck ,
rachael71638
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Nanny1086 rachael71638
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sandy58386 Nanny1086
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Nanny1086 sandy58386
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rachael71638
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i have bought a hand held spiro machine from Amazon, maybe i'll get a better result in my own home. It's electronic, are they reliable?
all this is sending my health anxiety into overdrive, but i'm sure half this green stuff is coming from my sinuses as they are blocked i can feel it going down my throat sometimes. Sorry to ramble!
rachael
DawnDedee rachael71638
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I was born with severe asthma that nearly killed me 3 times before age 5 and once again at age 23, then by latter 20's lost 50% of my lung function, then by early 30's lost 20% more all due to permanent damage and at some point the diagnosis of COPD was added.
Now I am 56. Look at my picture and I appear normal when I should be blue. But I take all of my medications properly, never smoked and barely ever drank and I eat right and exercise.
God willing you will never be as bad off as me. Just keep your lungs safe from secondhand smoke and teach yourself to use breathing techniques to stay calm during difficult times and take excellent care of yourself. The medications they have today can help you live a symptom free life!
Sue wish you the best!
Dawn
Nanny1086 DawnDedee
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