Most Probably going to be COPD- so worried.

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Hi, my name is Rachael and I'm 38 and a mother of two kids 6 and 8.

I'm writing this through buckets of tears and will admit I'm not such a strong person emotionally. I'm just terrified to be honest and just need a little support.Some Background- six weeks ago, maybe i had mild broncitis i don't know, i went out for a few drinks ( usually i'm tee- total due to Miniere's disease) with friends, but generally i felt fine. Bit of a hangover the next day, but the day after that ,Wham! Full blown bacterial pneumoni in right lung and in Hospital for a week( i'm english but live in Holland) the dr's kept asking me if I'd had lung problems before because the type of bacteria they found Heamophilis influenza was usually just found in patients with COPD. I was a bit shocked ,i gave up smoking ten years ago after smoking for ten years, i'm quite fit and a healthy weight- maybe a bit under. Never had any lung problems before. Fast foward 4 week, i go back to the consultant, he says , pneumonia is getting better, but after giving him another sputum sample as i'm still coughing up green stuff he says he'll ring me in a week. So, Xmas eve i speak to him over the phone, he  says the Heamophilis Bac is still there and now the are looking down the road of COPD- maybe Chronic Broncitis. I'm not coughing hardly, just to get this bit of stuff up. Sometimes my breastbone feels a bit tight. Lung fuction tests are at the end of Jan. Having read everything and his words, he's probably right and i'm petrified, my kids are so young, i kn people's experiences are different- but how many 'useful' years do i have left- generally? Thanks in advance, off to take the dog for a walk and pull myself together!!

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  • Posted

    hiya rachael    try not to worry as it sounds like your drs are on top offit . the main thing is you keep on top off the pheumonia so long as you are beating that.  thats the main thing and the copd you will learn to addapt too  the main thing is to tell your dr any thing that you think isnt working or if it get worse . try not not worry as that will just have a negative afectt   keep taking that dog for a walk lol hope this helps 
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  • Posted

    Hi,first of all, follow up all doctors appointments ,and tests, then don't panic, I'm 69 ,I was diagnosed in 1992 first with asthma then chronic Bronchietis in 1998. I too have the Pneumonia you talk off more than once at least 3 times as I remember and once spent Xmas and new year in intensive care, that was 2008 , the best thing about the out come I was put under the care of Copd specialist nurses ( hope you've got the same out there ) ask to be refered to them, over here we have a rehabilitation fitness course it's an 8 week course ,again hope they do that over there, before I did the course ,my husband used to say ,,,don't do that you'll be out of breath ,,,,now ,,,well yes I have my limitations ,but I now go to the gym 2 times a week, I do 2 Klm on the treadmill ,3 Klm on the bike , & 10000 metres on the rower , don't just sit back and do nothing ,like if did, do slight exersice as often as you can ,and you will start coughing that's good it will help clear the rubbish off your chest, don't over do it though , know your limits ,

    I'm on medication ,have been on ,ventalin inhaler,seratide inhaler ,and tiotroium inhaler, I also sometimes have to use my nebuliser ,just stronger than the inhalers, you will have used this in hospital, I got my own to use at home as and when I need something a bit stronger, but I only use it if my chest is bad, I have strand by antibiotics so I can start then as soon as I start an infection, and the occasional steroid course, ,and that's about it, my advise would be, ask for scan of your chest, 

    and try not to worry too much ,take your medication regularly ,rest as much as possible, and that's about all I can say !I'll be back at the gym next Tuesday !as I too have had a bad virus and chest infection, good luck ,

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  • Posted

    Hello Racheal 

     Dont panic yet... you dont have a diagnosis and so you may be worrying needlessly..

      We all get sick and symptoms can be from many different things.. You will have to go through some tests which will narrow the field and eventually you will have an answer..   Also COPD comes in many forms and severity and so there is no big deal yet as COPD usually comes on slowly and not in a month or so (so from what you've said it seems less likely, though not impossible)... 

    You need to relax and keep walking the dog  smile both for your Cardio-Vascular health and relaxation.. 

    Your doctor seems to be on the ball and your general health is 'fit' from what you have said...   As I have said in other threads Drugs and health care in general is much better than it was...

    I can only see that this Bacteria are also found in COPD but not exclusively..!

    really... go through the process that the Doc advises and find the earlieast appointment that you can but COPD is only an umberella term for a problem with breathing... find out what it is and then there will be a way forward... the Kids still have a mum and dont let this possibile outcome mar your life...

     

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  • Posted

    Rachael, crying is a good release which physically removes toxins. Never worry about crying. 

    If it is COPD (don't forget the other possibilities like bronchitis, treatable), it sounds like it has been found early, which can improve your chances of effective treatment to slow down the effects. 

    The fact you're still able to care for your children and walk your dog sounds very favourable in itself. 

    Also, COPD is a 'blanket' diagnosis, an umbrella, if you will, that covers many more specific diagnoses. Much of which isn't ascertained before PM.

    This is by no means the end of the road for you. 

    I also understand what it is to live with anxiety, whatever the cause, and I have found that CBT Meditation, Mindfulness, yoga breathing, and visualisation are my best friends in these times. There are many free online services for all of the above, but should you require any help, please feel free to ask - I can offer you links to sites I have found most helpful, but between Google and YouTube, it's fairly easy to access. 

    Love, light and hugs, hanb

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  • Posted

    Hi Rachael!  Great responses and support from Nanny and Wayne.  What concerns me is that your doctor has made a "possible" diagnosis but you can't get in to have further testing until the end of January!!!  My experience (I am 72) was:  I was dizzy, short of breath, and blood oxy level was 72.  My GP said "something is going on and we're going to find out what it is".  He sent me directly from his office, with oxygen tank in tow for a CT scan.  I waited after the scan for the radiologist to call my doctor.  I spoke to my doctor on the phone following his discussion with the radiologist (yes, I had COPD).  My doctor set up an appointment for the same day with a Pulmonary specialist.  My point in all of this is.....I'm very concerned that you have to wait a full month for testing.  I think you need to be more agressive and insist on earlier testing.  The sooner that you get a positive diagnosis, the quicker you will be put on proper rehab/meds, etc.  Now, a year later, my blood oxy level is at 95 consistently, I am on Spiriva and Advair, I use oxygen only at night,I walk 3 miles a day, etc.  Quite frankly, if I didn't keep my meds right by my make-up mirror, I might forget to take them.  I attribute my "healthy" feeling to the fast action of my doctor.  PLEASE, Rachael, see if you can expedite your testing!!  Hugs to you!!
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    • Posted

      Oxygen levels are my way of seeing if ,how I'm feeling is due my lungs or something else, I have problems with oxygen levels however as yet I don't have to use it, my levels drop quite frequently, and at different times, I have now been told I can't go abroad by plane even with continuous oxygen during the flight, and I'm afraid of water ,so it's good old UK for us, 

      I agree that the faster you get tested in full and get the correct diagnosis is important ,but I have found that a couple of weeks waiting time isn't that bad, if you've got a good GP and your medication,and you can do a bit walking etc, you are you are young ,and hopefully a non smoker ( if you do smoke stop NOW  ) ,that's the best advise I was given ,,,,good luck ,

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  • Posted

    Thankyou s so much for your replys. I am taking it  a bit easier now. So is the idea to get all the junk up without straining too much? The Dr i have seen is a pulmorary Dr, i think i will call him Monday and ask for an earlier app. 
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  • Posted

    Hi, yes it's not nice trust me I know,,,,but it has to come up and OUT  ,I take a few deep breaths through my nose and hold for 3 seconds then exhale my lungs through the mouth fully ,YES YOU COUGH  ,if you leave the rubbish in your lungs it settles in the base of your lungs like a puddle or warm and cosy ,,,then that leads the bacteria to grow and then infection , I wish only the best ,good luck , 
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    • Posted

      Nanny......have you talked to your doctor about a portable concentrator?  My husband and I don't fly, we travel by motorhome.  However, I acquired an InogenOneG2 portable concentrator that you can plug in OR has an 8 hour battery life.  My mother-in-law (God rest her soul - passed at 93) had purchased the concentrator specifically for air travel.  It is not continuous flow; it is pulse-flow; however, my Pulmonary specialist suggested that I just increase the flow 1/2 ltr. when I use it on trips.
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    • Posted

      Hi, I don't need oxygen at home or in the uk ,I've never been prescribed it ,except for during a flight, but even with oxygen my levels drop so low it's not safe for me to travel by air, 
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  • Posted

    Hi, today i had my lung tests. I was supposed to have an appointment with the consultant straight after but he was sick, oh well.i did manage to see the Fev , it was 81.3. Which is the lower end of normal? Did'nt see the other results. Still coughing up some green stuff, and havewhat feels like inflamed tubes, if that makes sense. On reflection i was beyond nervous and couldn't fully understand the instructions,my dutch after 6 years is still rubbish!

    i have bought a hand held spiro machine from Amazon, maybe i'll get a better result in my own home. It's electronic, are they reliable?

    all this is sending my health anxiety into overdrive, but i'm sure half this green stuff is coming from my sinuses as they are blocked i can feel it going down my throat sometimes. Sorry to ramble!

    rachael

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  • Posted

    God willing, you will be around a long time!

    I was born with severe asthma that nearly killed me 3 times before age 5 and once again at age 23, then by latter 20's lost 50% of my lung function, then by early 30's lost 20% more all due to permanent damage and at some point the diagnosis of COPD was added.

    Now I am 56. Look at my picture and I appear normal when I should be blue. But I take all of my medications properly, never smoked and barely ever drank and I eat right and exercise.

    God willing you will never be as bad off as me. Just keep your lungs safe from secondhand smoke and teach yourself to use breathing techniques to stay calm during difficult times and take excellent care of yourself. The medications they have today can help you live a symptom free life!

    Sue wish you the best!

    Dawn

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    • Posted

      Your words are so uplifting ,I'm 69 next week ,and suffer from asthma,emphasyma,copd,and chronic brinchiets,,,,keep positive ,eat well ,exersise as and when you can, and have regulations check ups, take your medication without fail, and see if you can get refered to pulmary rehab,,,,you won't regret it, oooops this should have gone tomRachel 7638 ,,,hope she sees it, 
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