Most reputable rheumatologist
Posted , 5 users are following.
Any thoughts from anyone? I'm about to make an appointment to see a Rheumatologist (second opinion). I'm doing my best to find which is best hospital to attend in my area (York, Castle Hill, Hull Royal, East Riding Community). I'm also aware, it's not just a case of the best hospital, but the best consultant. My GP is adamant I have Fibromyalgia, but I've felt like I've been passed to different consultants, without any proper diagnosis. Just wondered what others might suggest.
0 likes, 9 replies
Misssy2 Mixed44
Posted
I live in the US....but I have a comment...its SO frustrating trying to get a diagnosis....BUT, I bet your Dr. is right....I say that because my GP said I had Fibro in 2011....I didn't want to hear it because you CANT PROVE Fibro.
I now have a new Dr. who referred me to a Rheumatologist...and the Rheumatologist did all the blood work and says I have Fibro....because i do not have Lupus or Lyme or SLE.
My GP had done all the bloodwork too...I just didn't want to believe him....I wanted a "real" diagnosis, not that I want a bad disease...I just wanted to be validated..
When I say I have Fibro...its like people stop listening.
Mixed44 Misssy2
Posted
Hi Misssy2
I have to agree with you with what you say.
I also agree with your "wanting to be validated" comment. I've been asking the health professionals for some time now for something in writing so that I know what I'm dealing with.
?As for your last sentence. It made me smile. Why does that sound familiar? I know exactly what you mean. It's been happening to me for a while.
Misssy2 Mixed44
Posted
Yea, we don't want to have anything serious..but we do want something real....that people at least think we are not just drama queens....LOL
loxie Misssy2
Posted
how very true Misssy. I also have OA and I now find that when people ask what's wrong I major on the OA first because they seem to sympathise and understand that better. As soon as I say fibromyalgia, they either havent a clue or as you say just switch off. I am still searching for a more 'traditional' diagnosis. Let's be honest - the word fibromyalgia is just a description of part of the symptoms - 'fibro' meaning fibrous tissue and 'myalgia' meaning pain - YES, I know I have fibrous tissue pain but what the heck is causing it and why cant you help me. It'd be like calling something like chickenpox 'itchy spot syndrome' in latin - no use whatsoever for those of us who are suffering.
sukes Mixed44
Posted
Hello Mixed,
I live in Devon, son I'm not able to offer any advice really as regards to Rheumatologist. The one I was under a few years ago, in my opinion, didnt really understand what I was going through, then for some reason it changed to the current one and she is amazing. She is really supportive although she seems very young ( probably at least half my age) I hope you find someone who understands what you arae going through. x
I live in Devon so probablyt t
sukes
Posted
Sorry, part of my reply is repeated . don't know what I did, but I'm not very techno wotsit.
Mixed44 sukes
Posted
Hello Sukes
?I think what you mention is very important, and that's what people need in life - someone who understands what you are going through. I must admit, my GP seems to be understanding, and she has been providing input and reports to the specialists and higher ups and attempting to explain my problems to them. The trouble is, they don't appear to want to listen. I just keep banging my head against a wall.
?Ps - I'm not very techno-wotsit, either x
kath2 Mixed44
Posted
Mixed44 kath2
Posted
I live in the Yorkshire area. Not too far from Hull and York