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Moving with PMR

Posted , 9 users are following.

constance.de
constance.de

I'm not usually a "stressy" person, but we have just moved (for the 17th time!!)  The move was from a large appartment to a small retirement flat.  

You 'd think after 17 times we'd be used to it - BUT that was before PMR.  Now I know what stress is!!  5 days after move we both went down with flu, have now had symptoms for 3 weeks.  Our new home looks like an over full garage.  We just haven't the strength to DO anything!  Not much to do with PMR - just wanted a bit of sympathy from someone!!!

3 likes, 50 replies

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  • LisaCACO
    LisaCACO constance.de

    Posted

    ugh. my sympathies. just the thought of moving makes me want to cry. I suggest just making the bed, grabbing a glass something warm and just going to bed. no need t unpack quickly. take your time. our last move took me nearly a year to get all the boxe out of the house-seriously. 

    sending good thoughts your way.

  • tricia11872
    tricia11872 constance.de

    Posted

    You poor thing. I am so sorry you feel so down. Where abouts are you? Perhaps someone could help out. I live in the South of England.

    xx

    • constance.de
      constance.de tricia11872

      Posted

      I live in Germany but our daughter lives only 1 km away, so we have help if needed.  Not much she can do though, everythng needs to be sorted out, and we have soooo much!  We'll cope when we get rid of this blasted flu.  Thanks for your kind thoughts.
  • EileenH
    EileenH constance.de

    Posted

    Oh Constance - I really can sympathise - been there, done that and it's enough to make you never ever move again isn't it!!!!

    We sold our big house to start the process of retirement but it was just as the market crashed - had it been on the market 3 months earlier we would have had a good 50K more - and all of it, as it was we part exchanged for a smaller house and money. It's fine, we lived in it for several months and it is let - but it was just a few weeks after we moved that the PMR that had been livable with for 5 years (without pred) went mad. And I had a transient global amnesia (google it) at the same time. So a bright consultant decided I might have epilepsy, no driving. But at least a TGA doesn't hurt and lasts only a few hours not like flu!!!

    If I were closer I really would come and help - except I'd really rather NOT catch your flu! I do hope you start to feel a bit more human soon. Are you up to eating yet? Is there a local restaurant that will deliver? 

    Get well very soon - I thought you had been very quiet.

     

    • EileenH
      EileenH

      Posted

      And there isn't anything in TV at present is there - Fasching, Fasching or Fasching. Not the sort of thing to watch when you feel delicate.
    • constance.de
      constance.de EileenH

      Posted

      How kind!  Not eating, but food and help abundant, thanks to daughter.  She has started cookng for 4 and brings all left-overs round regularly.  Also, now being in a town, lots of restaurants that will deliver.  Also an over full deep freeze and a microwave, so little chance of us dying of starvation.  We force ourselves to eat, but can only manage very small portions.  We'll get there!
    • erika59785
      erika59785 EileenH

      Posted

      Hi Eileen, Fasching -- Fasching.....I remember, it goes on and on and they carry on like crazy!  I forgot about it.

      By the way --- I decided not to fly to Germany because I did not feel well for some time --- not necessarily all PMR, just did not feel like traveling in the winter.  And a good thing....I hear from my relatives in Munich that they all have the flu right now.  This would have been the time I would have been there for a week. 

      I will postpone this trip to a much later date.  For now I am trying to get below 20 mg of Prednisone which I want to do VERY slowly. In the past I have had trouble reaching 17 1/2 and not feeling well and having more pain than usual.  Would you suggest I  stay with 20 for at least 2 weeks, and then try to reduce by 1 mg for maybe a month --- like 19 mg dailyfor a month, and then 18mg daily for a month and so on....

      Sorry, to bother you.....PMR is still a big challenge for me.

      The Faschingszeit will soon be over....the Italians like to dress up with their masks....and the Germans go crazy especially in the Rhein area! 

      It tends to be a bit much, so I think. .

       

      Thanks for your input.  All the best,

      Erika

       

    • EileenH
      EileenH erika59785

      Posted

      Here in South Tirol it is rather more restrained! It started on Thursday with Unsinnige Donnerstag (Silly Thursday) and will finish on Tuesday. It is far easier to avoid...

      I have posted my version of the reducing plans in this thread:

      https://patient.info/forums/discuss/pmr-gca-and-other-website-addresses-35316

      It is at about post 5 or so. Read it all for the explanation of the thoughts behind it. Doctors are starting to use similar plans with success.

      If the pain you are having is due to the removal of a fair amount of pred in the dose you are taking this should help that a lot. Whether you stay at a dose for a month once you have reached it is up to you and how you feel - at this sort of dose and with this slow reduction you should be fine to contiue it with not too long between. It is the "overnight" change of dose from every day higher dose to every day lower dose that seems to cause the biggest problems and most pain.

      If this slow reduction still causes a return of the pain and stiffness at a dose well above 10mg then your doctor should maybe consider an alternative diagnosis. Some other forms of arthritis can look exactly like PMR in the very early stages but they don't respond as well to pred or there are difficulties reducing the dose very far.

    • constance.de
      constance.de EileenH

      Posted

      Carnival here in NRW is crazy.  It starts on 11.11 at 11.11 and continues until  day before Ash Wednesday.  Why is it the Germans go mad, en mass, at certain times of the year?  Mind you, all those happy people celebrating together, marvelous!!  Why is it then that TV script writers think all we are interested in is murder and violence?  Where are the "happy" programmes and even perhaps GOOD news?  Does nothing good ever happen, anywhere, in this complicated world?
    • EileenH
      EileenH constance.de

      Posted

      I don't "get" Fasching at all - I thought you might since you've lived there longer! I've given up watching TV except for sport - and a few carefully selected programmes on BR, HR and our local channel which has interesting history and tourism-related programmes about the region. There are a load of programmes about nice places in Germany/Austria which I'd watch if they weren't designed around the same format that was in use 30 years ago when I lived in Germany with "folk" music I assume that's the term). Some things never change Heino and Hansi Hinterseer!
    • constance.de
      constance.de EileenH

      Posted

      We've never "got" Fasching (too English!!!)

      We have now moved to Soest (10 kms from my beloved lake).  It is a lovely, sleepy, old, walled, town.  Thank goodness they don't celebrate carnival - well, only in the villages around here.

    • constance.de
      constance.de

      Posted

      Forgot to say - BR and HR are about the only channels we watch, too.
    • EileenH
      EileenH constance.de

      Posted

      I have the occasional excursion to NDR - for their health programme. Like most German health info they are pretty accurate, not sensationalist at all. Austrian TV is AWFUL - dubbed US rubbish and celebrity worship...
    • erika59785
      erika59785 constance.de

      Posted

      Constance, the Germans do go crazy during this time of year.....the only time they can do as they please and nobody judges them for being silly.....!!  They are usually rather stuffy and overly correct!  This is why I prefer to live here in the USA.

      I remember those years when I lived there.....I don't miss Fasching at all.

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