Moving with PMR
Posted , 9 users are following.
I'm not usually a "stressy" person, but we have just moved (for the 17th time!!) The move was from a large appartment to a small retirement flat.
You 'd think after 17 times we'd be used to it - BUT that was before PMR. Now I know what stress is!! 5 days after move we both went down with flu, have now had symptoms for 3 weeks. Our new home looks like an over full garage. We just haven't the strength to DO anything! Not much to do with PMR - just wanted a bit of sympathy from someone!!!
3 likes, 50 replies
LisaCACO constance.de
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sending good thoughts your way.
tricia11872 constance.de
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xx
constance.de tricia11872
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EileenH constance.de
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We sold our big house to start the process of retirement but it was just as the market crashed - had it been on the market 3 months earlier we would have had a good 50K more - and all of it, as it was we part exchanged for a smaller house and money. It's fine, we lived in it for several months and it is let - but it was just a few weeks after we moved that the PMR that had been livable with for 5 years (without pred) went mad. And I had a transient global amnesia (google it) at the same time. So a bright consultant decided I might have epilepsy, no driving. But at least a TGA doesn't hurt and lasts only a few hours not like flu!!!
If I were closer I really would come and help - except I'd really rather NOT catch your flu! I do hope you start to feel a bit more human soon. Are you up to eating yet? Is there a local restaurant that will deliver?
Get well very soon - I thought you had been very quiet.
EileenH
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constance.de EileenH
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EileenH constance.de
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erika59785 EileenH
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By the way --- I decided not to fly to Germany because I did not feel well for some time --- not necessarily all PMR, just did not feel like traveling in the winter. And a good thing....I hear from my relatives in Munich that they all have the flu right now. This would have been the time I would have been there for a week.
I will postpone this trip to a much later date. For now I am trying to get below 20 mg of Prednisone which I want to do VERY slowly. In the past I have had trouble reaching 17 1/2 and not feeling well and having more pain than usual. Would you suggest I stay with 20 for at least 2 weeks, and then try to reduce by 1 mg for maybe a month --- like 19 mg dailyfor a month, and then 18mg daily for a month and so on....
Sorry, to bother you.....PMR is still a big challenge for me.
The Faschingszeit will soon be over....the Italians like to dress up with their masks....and the Germans go crazy especially in the Rhein area!
It tends to be a bit much, so I think. .
Thanks for your input. All the best,
Erika
EileenH erika59785
Posted
I have posted my version of the reducing plans in this thread:
https://patient.info/forums/discuss/pmr-gca-and-other-website-addresses-35316
It is at about post 5 or so. Read it all for the explanation of the thoughts behind it. Doctors are starting to use similar plans with success.
If the pain you are having is due to the removal of a fair amount of pred in the dose you are taking this should help that a lot. Whether you stay at a dose for a month once you have reached it is up to you and how you feel - at this sort of dose and with this slow reduction you should be fine to contiue it with not too long between. It is the "overnight" change of dose from every day higher dose to every day lower dose that seems to cause the biggest problems and most pain.
If this slow reduction still causes a return of the pain and stiffness at a dose well above 10mg then your doctor should maybe consider an alternative diagnosis. Some other forms of arthritis can look exactly like PMR in the very early stages but they don't respond as well to pred or there are difficulties reducing the dose very far.
constance.de EileenH
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EileenH constance.de
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constance.de EileenH
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We have now moved to Soest (10 kms from my beloved lake). It is a lovely, sleepy, old, walled, town. Thank goodness they don't celebrate carnival - well, only in the villages around here.
constance.de
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EileenH constance.de
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constance.de EileenH
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EileenH constance.de
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erika59785 constance.de
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I remember those years when I lived there.....I don't miss Fasching at all.