Moving with PMR

Posted , 9 users are following.

I'm not usually a "stressy" person, but we have just moved (for the 17th time!!)  The move was from a large appartment to a small retirement flat.  

You 'd think after 17 times we'd be used to it - BUT that was before PMR.  Now I know what stress is!!  5 days after move we both went down with flu, have now had symptoms for 3 weeks.  Our new home looks like an over full garage.  We just haven't the strength to DO anything!  Not much to do with PMR - just wanted a bit of sympathy from someone!!!

3 likes, 50 replies

50 Replies

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  • Posted

    Hi Eileen...it took a week! In the end I sat in the solicitors office all day waiting for the "chaps" to arrive. He said he wanted to go to lunch! Words failed me. Numerous phone calls later and a week of frustration we moved in.
    • Posted

      We bought a flat for my daughter to live in about 15 months ago - an empty, renovated flat in Scotland so it took barely 3 weeks from finding it online to getting the key (just as well or she would have been on the street). However, I called RBS to find out what I had to do to transfer the money to the solicitor's account, wrote, printed, signed and faxed the instructions to the number they gave us, it made the fax-sound and we got the confirmation it had reached the number. On the day before we discovered it hadn't reached the solicitor's account. First thing next morning I rang RBS - you can no longer speak to your branch, it's all done via a call centre staffed with fools, it had taken hours the first time, and in response to "this is urgent, I need to be put through to the branch" got the usual "oh we can't do that, we'll send them a message and they will get in touch with you within 3 hours".

      I spoke through gritted teeth and they did seem to get the message that that was no use, I was an hour ahead of them, the shop with the fax would be closed until 3pm and if I didn't get to speak to them NOW my daughter would be on the street to sleep.  The impossible was achieved, I was put through. 

      I mean - who on earth has a fax at home these days? And an emailed pdf of the scanned original wasn't acceptable - can anyone explain why not? The fax they receive is no different. It took 3 goes to get the damn thing to the right place but she got her keys. I felt like a piece of wrung out loo roll - and realised just how much the combo of PMR and pred takes out of you however well you might feel 99.9% of the time.

      I love my bank here - you can phone them, you can go in in person - and they make the appropriate calls while you are there to sort out any mess - like when someone paid the invoice for a translation into an account that was closed 2 years ago. The bank had it in a safe place and all I had to do was ask - they HAD failed to send me a letter telling me there was money waiting for me but it only took about 10 minutes to get it sorted. 

    • Posted

      Never, ever bank with RBS.  Must be the worst bank in England!  Have several friends who have had difficulties.  David actually started proceedings agains them.  Surprisng how quickly they got back to us!
    • Posted

      We realised our money was in between!  In between where I ask and our bank manager went on hols...very convenient. The days ticked by slowly with no resolve. It seemed our money had disappeared...quite frightening. No more bacs or chaps for me.

      off to watch the rugby. Do you support England or Italy. Have a good afternoon.

      x

    • Posted

      We have banked with RBS since we were at uni in Dundee, had never had any trouble at all and our local branch staff all knew us. We lived in the country in Scotland, the branch was 2 doors down! All the changes that have come in have made us wish we had changed while we were still in the UK - it is a very different matter getting a UK account when you no longer live there. Because we had had our accounts for a long time it wasn't a problem keeping them on. It works reasonably well online and they don't have a lot of our money!

      As a true Scot I support Scotland and whoever is playing England (though I can't bring myself to support Australia). Otherwise Wales biggrin

  • Posted

    Its not just self pity. Sounds perfectly normal to me. I had a bit of practice with another chronic condition from about 25 years ago. And a bit of wonderful professional rehab help. A lesser condition from childhood. But neither quite prepared me for PMR and pred. A rock and a hard place. And of course there are much worse things.

    And the boxes are a constant reminder of some helplessness and frustration. Then add the ups and downs.

    I keep saying I'm lucky. And I am. But there's a few tricks. Pick a box. Any box. Open it. Take one thing out of it. Protect it from the ruddy dose. Allow a sentimental memory for a moment if it helps. Discuss it. Remember the romatic moment you first ate your cornflakes out of the bowl (I know, it takes a bit of practice). Take as long as it takes. Then put it where it belongs. Either in the new home or out it goes. Ruthless simplicity.

    Then stop. Savour the moment. Marvel at the early success. Stare at each other for a moment. Congratulate each other. High 5 if you like. If you can raise your arms far enough that is. And laugh at how silly it all sounds. Then make the all important cup of rosie lea.

    And your reward is you get to take two things out of the box tomorrow ........ How exciting is that?

    Still not sure if this is the sort of sympathy you need but it works for me .....

  • Posted

    I moved a year ago just before PMR struck and there are still boxes waiting to be emptied. I have to agree with Eileen and think 'never again' even more so as I live on my own so no one else to help out.  So I just move the boxes into different positions every now and then in the hope that they won't look so out of place!  I am slowly sifting through things and taking anything I can part with to the charity shop.   As long as we all keep our sense of humour nothing seems so bad.
    • Posted

      very true. a sense of humor is the best weapon for survival. 
  • Posted

    Point to ponder: does it help to be slightly mad when you have PMR? Like in the sense it helps you laugh at rubbish situations?
    • Posted

      Certainly.  And I have a lot of rubbish situations at the moment, so I'll just pop into the loo and have a good laugh at myself in the mirror.  Mind you  can only see out of one eye at the moment (flu has caused closed, swollen eyes, ear ache, PMR back with a vengence, headache, etc etc.).

      Still, if I recognise myself it will be a plus. Don't think that young doctor would say I look like a young 70 year old at the moment!!

  • Posted

    My eyes have deteriorated too. I am struggling with variofocals ...Take a letter Miss Jones has nothing on me. In fact I looked in the mirror and didn't recognise myself!!!
    • Posted

      I refused variofocals - and I'm glad I did. I have distance and computer specs and tended to have to move them up and down my nose when the pred was higher. But at least I didn't have one area that was clear and another that wasn't. It does seem to have settled down a bit now.

      Only trouble is I had to get new specs as an emergency when I mislaid them last summer. The strange optician insisted I had to have a stronger prescription and the frames are much bigger than my old ones - so now I can't get away with moving the distance ones down my nose to read something, I have to take them off altogether and hold the text about 3 inches from the end of my nose to see it. I'd love to be told I had cataracts - I could have good distance vision and only need reading glasses for the first time in my life!

  • Posted

    I find I am more grumpy than usual....not much patience any more. Can I blame it on PMR ??

    We went to Venice last year for the Carnival. V good and not as crowded as we thought.

    • Posted

      Grumpy and a bit short on patience fits the bill Tricia.  I think it is quite natural when you are trying to cope with a condition that has taken control of your body and won't go until it's ready.  It is not a well known condition, and people around you don't understand what a struggle it can be sometimes to keep going particularly when you know you have to pace yourself and all you really want to do is rest now and then.
    • Posted

      I was very short-tempered with PMR - even more so than normal. I think I have mellowed a bit on the pred but others say it makes them moody - who knows!

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