Mr Andrew Hayward
Posted , 5 users are following.
i had ankle fusion Talovicular March 2017 and was told it did not work , wanted to do it again and i said its the only part of my foot and ankle that does not hurt , so NO then told me i had arthritis in every bone of my foot of which we have 33 ive been told , said its impossible to fuse them all, it was caused by assault which people were stamping on my legs trying to break them , it caused Bone Marrow Odemea which has eroded all cartliage between bones and now bone on bone with cysts between , I am currently on Buprenorphine 20mg patches combined with Duloxetine 60mg for the pain and without this medication dont thin id be able to walk at all , They are on about increasing to 30mg in the near future but has to be done gradually , Surgeon has discharged me and said my only option is Amputation or Medication for the rest of my life (i am 54) , I really am considering amputation as the pain some days is horrendous even with the medication , just a little concerned over the alleged Phantom pain
I am under a pain management Doctor who has been doing it 28 years i said how many times have you recommended amputation He said Never as his job was Pain Management
Would really appreciate any advice / Experience of a similar situation
Thank You
0 likes, 5 replies
Kknee07 andrew77233
Posted
Andrew, I have had 4 ankle surgeries with the last 2 being ankle fusions. mine was from a car accident that shattered my ankle. I could have chosen amputation also but decided not to because of the phantom pain. I'm 50 so I decided to live with it. I did get myself a mobility scooter that helps with taking my kids more places. I do walk in the grocery store and short trips. what a hard position you are in and I feel for you. I still
might change my mind after I give this some time. I would also love to hear if anyone had an amputation and how it is working out. good luck to you and I hope everything works out!
christine76972 andrew77233
Posted
Dear Andrew,
there is a young woman on youtube called footless Jo she has posted her journey from fusion to amputation.
i hope that you can find her ok and look at her story and maybe make contact if its something you are considering.
very best wishes
chris
epiphany19 christine76972
Posted
All the best to you. It is no easy decision. Having the best surgeon possible should leave you w/o phantom pain. That was one of my concerns.
andrew77233 epiphany19
Posted
All staff at the hospital tell me how good he is which i dont deny
The operation i had he said had 95% success rate unfortunatley
I came in the 5%
It would not be him who did the amputation he told me
epiphany19 andrew77233
Posted
There is something called a knee crutch. Im getting one soon, then Ill have time to research and search fir a surgeon to do an inbone TAR. The ones I have seen don't have enough experience with it, considering the horror stories I have read on here.