MRI results what does that mean??

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Hi

I had my MRI results sent me via NS cause I have opted to get the same letters as my GP.  It says I have a over 20mm herniation.... I'm just wondering does that mean they will definitely do surgery?? I am systematic with it... Had to change loads at work just to stay in work.... I'm kind of happy that I now know but in other ways sad that it's that big. Any I put would be great thank you 

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  • Posted

    The think with chiari malformation is it's different for everyone my cerabel tonsil was 5mm and 8mm and i was rushed into surgery du to my symptoms. But you can have a huge cerabel tonsil and cope really well with just a bit of headaches. My advice would be to talk to your neuro surgeon about it.

    Hope that helps

    Jaquie xx

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    • Posted

      Hi jaquie 

      i don't just get headaches I get migraines, blurred vision, eyes moving involuntary... Aches and pains, etc.... Just wanted to see if anyone else had this size herniation.... I'm just wanting my life back.....had to stop loads driving, riding etc.... 

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  • Posted

    Hi Helen. I think the answer to youre question is .. how do you feel about surgery? And do you have a syrinx on youre spine? I'm sure you're N/S will provide you with answers to. Try and request a chiari specialist. If you are from the UK there is a ann conroy trust that has a list of specialists in the UK. My chiari is 5mm and I'm due to see N/S next tuesday. He has already offered me surgery but I'm just to scared to take that step. All these negative story's really put me off. But I suppose positive ones don't really have much to talk about ay? For me my impulse headache levels change but the dizziness and shoulder neck pain has increased. It's a struggle everyday and I've been of work since last year due to blackouts/drop attacks. I think it all depends on youre symtoms and where and how you're headaches are. Hope you find answers soon. Chiari is hard to manage and even harder for others to understand. Tc smile

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  • Posted

    Hi Helen,

    I'm happy you found out what your problem was. It is so difficult to get a diagnosis. Based on what you said I'm certain you will get an answer soon regarding surgery. For me personally, taking one step at a time and getting through each day is all you can do. I'm taking advantage of watching movies and resting. May you get your answer soon.

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  • Posted

    20 is pretty long. That means alot of tissue is being expelled through your foramen magnum at the base of your skull. If you are having alot of symptoms, I would say you would definately be a good candidate for surgery. It probably depends on whether there is CSF flow blockage! But it won't get any better, nor will your symptoms, without surgery to open up more space. 

    I would be really suspicious if your NS doesn't recommend surgery. 

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