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Mrs

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lesley10106
lesley10106

I was diagnosed with Graves disease in January but continue to feel unwell although my blood results have improved I am taking Carbimazole 5mg twice a day and 40mg of propanalol  twice a day for the shakes.  I feel so unwell, unable to sleep at night. When I do sleep I crash for up to 18/24 hours. I have no energy,headche and muscle aches.  I am finding it hard just getting through the day.  I have a telephone appointment with the endocrinologist today (I hope) and blood test next Monday.  Any advice PLEASE

0 likes, 3 replies

3 Replies

  • Guest
    Guest lesley10106

    Posted

    You could ask your endo about your treatment progress and your latest thyroid hormone levels (including the normal range).

    I had a relapse of Graves disease in January. Initially, I had to take 30mg Carbimazole, then 20mg, then 5mg. I am off medications for about a week. 

    Before reducing the dose from 20mg to 5 mg I became hypothyroid and was very tired and could easily sleep for 12 hours a day.  

    • lesley10106
      lesley10106 Guest

      Posted

      Thank you.  I am having a blood test tomorrow (managed to get in brought forward) and depending on the results the Endocrynologist said she may reduce the dose of carbimazole  I have put on weight and I am bloated. I honestly think my levels have droped
  • jack41577
    jack41577 lesley10106

    Posted

    Mrs,

    Good luck with everything. Diagnosed 3 weeks ago . , some shakes and lots of weakness but able to get through the day at work, I’m sure this disease hit everyone differently. I’m on 20 mg of  methimazole In am 10 mg night and 50 mg  atenolol for heart racing

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