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Ms brain lesions

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amanda34743
amanda34743

Hi I have been attending doctors for 3years or more now, and after a brain scan it showed 3 lesions on my brain, I am getting another scan end of this month to see if anything has changed... 2 neurological doctors suspect ms but said I should have more lesions... All my symptoms lead to ms.. What have others brain scans showed for diagnosis... Thank you xx

0 likes, 24 replies

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  • Oddity
    Oddity amanda34743

    Posted

    Hi, I am dealing with the same issues as you. I have signs and symptoms of MS. My MRI was abnormal with numerous small white matter foci more peripheral and subcortical than periventrical. I have looked at the MRI with my neuro and my lesions are very small and dark colored.

    I'm curious if you could elaborate on what your lesions look like and where they are located?

    • amanda34743
      amanda34743 Oddity

      Posted

      Hi oddity, I am under forth valley Royal and I got results by letter, I have since stated that when I get results from my next scan that I want to see both of them together! They told my I had 3 lesions 2 on one side and 1 on the other! I will keep u posted , be middle February I guess 
  • wendy80842
    wendy80842 amanda34743

    Posted

    I was diagnosed with ms in 2004, they never found specific lesions in my brain, but found a very large series of them wrapped around my cervical spinal cord area, which increased (over time and space). My neurologist told me that he suspected that I allso had very small lesions in my brain that weren't detectable. Some neuros use, mostly, outdated standards for diagnosis, which can cause people with ms to 'slip through the cracks', so many of us spend ridiculous amounts of time waiting for these standards to be met. I always urge people to keep an ongoing written record of signs and symptoms, including start AND end dates, as they can come in very useful, particularly dealing with short NHS appointments.

    Good luck.

    • wendy80842
      wendy80842

      Posted

      PS. My cervical spinal cord lesions showed up as white on my MRI scans.
    • Oddity
      Oddity wendy80842

      Posted

      My symptoms are near constant twitching in both my calf muscles.  I have some leg weakness.  My main issue is the intermittent pain I have in my bilateral thigh region and I get this weird pain in my anal area.  The pain in my thigh area is more pronounced after I go for a long walk or a jog.  The anal pain seems to come on at night when I am just laying in bed.  I also have occasional upper body tremors.  I think this is more from anxiety because the other symptoms tend to freak me out. 

      I was dealing with viral issue over the summer.  One ID doctor I saw said this could be fibromylagia or post viral syndrome and have nothing to do with my brain MRI.  I'm waiting for results on a Wesern Blot Lymes disease test I took with Ingenix to see it that may be contributing as well.  At this point, I am prepared for any diagnosis.

    • wendy80842
      wendy80842 Oddity

      Posted

      It's so often the case that we get to the point where we just need to know what it is that we have. My worst symptom is pain, too...sucks, doesn't it?! One, ill informed doctor told me: 'pain isn't a symptom associated with MS', which REALLY freaked me out, at the time. I complained to one of her colleagues, who DID know it IS a recognised MS symptom. Ho hum!

    • amanda34743
      amanda34743 wendy80842

      Posted

      thank you Wendy , fab advice, I have just sat today and written my days since January , even my gp wishes they would just confirm diagnosis for me as its been 4 yrs nearly now 
    • amanda34743
      amanda34743 Oddity

      Posted

      I also get the outer thigh weird pain, that's following numbness that I had in same area for about 3 months, walking is a struggle for me, legs just go so dam weak! Very frustrating as I used to be so active 😒
    • amanda34743
      amanda34743 wendy80842

      Posted

      Pain isn't an ms symptom, honestly do these people know their stuff at all. Am lucky that my brother is a doctor so he keeps me right! He told me just yesterday to start taking vit D tablets after the research thing yesterday in news ☺️
    • amanda34743
      amanda34743 Oddity

      Posted

      My worst pain is legs, but I get days where my whole body is stiff and feels like I have Been hit by a truck 
    • amanda34743
      amanda34743 wendy80842

      Posted

      my brain ones were white they said... So glad my spine being scanned 
    • Oddity
      Oddity amanda34743

      Posted

      I'm sorry to hear about the pain in your legs.  I have pain in both my calves as I sit here and type this.  This seams to stem from the twitching in my calves as well.  There are some days I have weakness in my legs when I am walking.  It's so weird, it seems to come from my tailbone and then readiate to both my legs.  I can handle the weakness, but the pain is annoying.  Usually one or two Advil help me with that.  If it's really bad then I have to take a Tramadol and that knocks me out.

      Yes, you are very lucky to have a doctor in the family.

    • Oddity
      Oddity

      Posted

      Yes, vitamin D3 is critical.  I went to a Naturopath who ran blood tests.  My Vit D came back at 39 which I have always known is low.  She immediately put me on 10,000IU Vit D3 over a 3 month period to try to get this up into the 70-80 mark.  Once you get there then you taper down on the amount you take.  It is also critical to take a powder form of Calcium Citrate and Magnesium.  This works with absorption of Vitamin D or something like that.  Your brother will know more about this.  You also have to take a multi-vitamin to get the proper Vitamin B in your body.  It has to be Methalcoblamin type of Vitamin B. 
    • Oddity
      Oddity

      Posted

      Hi, I had one other question.  Do you feel your symptoms have worsened, stabilized, or gotten better over the past 3 years?
    • amanda34743
      amanda34743 Oddity

      Posted

      Symptoms have definitely got worse, it has greatly affected my work this year to the point that I will need to give up completely... Just don't have a lot of energy and if I do too much my body is in agony 😒
    • Oddity
      Oddity amanda34743

      Posted

      I'm very sorry to hear about your situation.  Make sure you try the vitamins and minerals.  I am currently reading a book called "Healing Multiple Sclerosis".  It has to do with diet, supplements, etc and how people have reversed their MS. 

      My problem is just this weird pain in my buttocks area, some pain in my thighs, twitching calves, and some weakness in my legs. I'm not sure if this is MS or some viral thing.  It's very odd.

    • wendy80842
      wendy80842 Oddity

      Posted

      I'm happy to talk about any of my symptoms. The worst of my pain radiates out from my back, I have both muscle spasticity and burning neuro pain, mostly it's manageable with my combination of meds. Occasionally, it seems to run away with itself and I just have to weather the storm. I find that the moment we get to September, the move into cooler temperatures makes my pain levels get a bit out of control, along with my coordination. Do you find your symptoms change with the seasons or weather?
    • wendy80842
      wendy80842 amanda34743

      Posted

      I'd recommend having your vitamin d levels checked with a blood test first. I just started taking vit. D, after being advised to do so. It made me feel very ill indeed, making me have really bad, painful stomach cramps and nausea/vomiting. It CAN cause serious health problems, too.
    • Oddity
      Oddity wendy80842

      Posted

      Well, this is all new to me.  I only started having symptoms in July of 2015.  Until about a month ago I did not have this weird butt pain that seems to creep up on me around 9pm each night.  It's the most bizarre thing.  My other pain in is my inner thighs.  This seems to be the most intense a few hours after I go for a jog or try to work out or even if I am just on my feet for a few hours.

      The only thing I am taking now is the occasional acetometiphen and very rarely a tramadol.  Can I ask what pain meds have you found that work the best?

    • wendy80842
      wendy80842 Oddity

      Posted

      No problem, I use tramadol, too, plus the other med. you mentioned (here, in the UK, it's called paracetamol), ibuprofen, pregabalin, nortriptyline and baclofen, to hit my various pain sensations from all sides. My neuro says that the area on my cervical spinal cord that has a build up of lots of lesions, is almost certainly responsible for all the damned pain signals my brain is 'detecting . As I keep seeing others post, "MS... the gift that keeps on giving", how true!
    • Oddity
      Oddity wendy80842

      Posted

      Yes, Tramadol does work.  I have tried that and it seems to suppress the pain and put me to sleep.  Two things that are really affecting me.  I wonder if I have lesions on my spine as well.  I have never had a Cervical Spine MRI.  Do you know if just brain lesions can cause pain as well or is the pain primarily from spine lesions?
    • wendy80842
      wendy80842 Oddity

      Posted

      While my pains are, most likely caused by my neck lesions, they are, more than likely, frequently caused by lesions in the brain. It's just as well, for me, that I'd been diagnosed prior to needing to have a metal clip using in my brain.
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