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Ms diagnosis

Posted , 5 users are following.

Aza1990
Aza1990

Today I found out the full diagnosis of MS I start lemtrada medication soon

0 likes, 10 replies

10 Replies

  • fester
    fester Aza1990

    Posted

    Hope all goes well for you again 90 take it easy
  • Oddity
    Oddity Aza1990

    Posted

    Yes, glad you can finally move forward with treatment. May I ask the results of your spinal tap? Also, I know they were initially possibly going to diagnosis you just by MRI. Can I ask if that was just a brain MRI or did they do your spine as well? Could you elaborate on where they found lesions on your brain and or spine?

    I'm still in limbo with some "non-ms" brain lesions and a clean MRI. I am repeating the brain MRI in a more powerful machine in a few weeks and they want me to do a thoracic Mri . I hope you don't mind me asking. Thank you.

    • Oddity
      Oddity

      Posted

      Sorry, I meant clean spinal tap.
    • Aza1990
      Aza1990 Oddity

      Posted

      They found higher levels of protein in my spinal cord and as for the MRI I had brain and spine scan which resulted in lesions on the brain and on spine cord itself anything else you need to know
    • Oddity
      Oddity Aza1990

      Posted

      My spinal tap was normal accept for my protein levels.  The norm was 0-44.  Mine came out to be 45.  All the doctors stated this was nothing to worry about.  May I ask what level your proteins were at?
    • Aza1990
      Aza1990 Oddity

      Posted

      I'll let you know when I find out all he said was it was at a high level
    • Oddity
      Oddity Aza1990

      Posted

      Thank you. I'm just curious because the neuros I have seen tell me the CSF is more about the O-bands rather than protein. Because I had no o-bands present they don't seem to care what my protein level was.
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