MS without lesions? Is it possible?

Im right there with u!

I am somewhat the opposite of you. I have 5 abnormal MRI's, all indication I have MS but I don't have the so called symptoms everyone says is MS.  They all tell me I have anxiety and put me on paxil. I am ALWAYS dizzy, vertigo, feel somewhat disoriented and paxil did help for awhile.  I finally went off it and everything I always feel is back. I think you may want to get a 2nd opinion. Maybe its early...or maybe you have lyme disease...or maybe you truly don't have MS.  Lyme is a great imitator.  Worth a shot.  It is possible too that you are healthy and your symptoms don't progress because of that.

Hi Hayhue,

I hope that you find some relief and answers soon!  I know all too well the added frustration and stress of no diagnosis can cause, and even make thins physically worse.  I have a similar story, but it stretched back almost 8 years. I've had very similar symptoms and I was recently diagnosed with Lyme.  I truly believe that you and your doctors should look into Lyme, which can look and feel a lot like MS.  

I also need help, I have had symptoms for a few years now. Have run through all the tests. Four mri and a spinal tap. The protein in my spinal fluid was 59!  I was concerned, but was told because i had no leisons, that i didnt have ms. I fall, have pain, numbing and tingling, low wbc , low vitamin d, the list goes on.  No diagnosis... Help.. there are times when I call and they make you feel crazy  not sure what to do  suggestions??

I am sorry to hear about your difficulties. I was diagnosed with ms almost 40 years ago. Long before the invention of the mri. (Based on symptoms, findings on exams and positive visual evoked responses, and lumbar puncture (spinal tap)). It is more than possible to live with me.  However, as I am finding out now, it is not possible to receive treatment-especially disease modifying treatment without a positive mri. The neurologists I’ve been seeing tell me that I don’t have ms.  No care at all for my increasing disability especially my vision. No interest in finding out what I have or of even suggesting that’s it’s all in my head........like I’d have 40 years of incontinence and all of that!  So yes, you can have ms without mri findings. Apparently 5-8% do. But the insurance companies won’t pay for treatment without them. So it almost doesn’t matter.  I’m looking for a doctor that is willing to help me. If you find one, I’ll go wherever I have to.  Good luck!  And keep positive thinking! It’s the most important thing you can do.  Stay cool, rest, take vitamin D and B12. Stay healthy. Keep active. Get a dog!!

Hey everyone. Sorry for the long absence. I've basically given up on testing for now and am just living with it as best as I can. Thank you so much for all the kind words and relations. It's always so nice to know we're not alone.

Hello, sorry I’m a little late to the discussion. Im in the same boat on this one. I didn’t even know that this sort of thing existed so it’s bitter sweet to find people like me going through the same things. I’ve been having numbness and tingling in my body on and off now for almost a year and it’s been relentless. Started as a small patch behind my ear and worked it’s way down into my shoulder and side then in to my legs and feet. All of my tests are clear and my MRI’s are clear, the only thing that came back positive was a lumbar puncture for oligoclonal bands. My neurologist is sending me to an MS clinic in the next two weeks. It can be tired and exhausting. But their is one quote that has helped me get by from a very great person in history. “If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.”- Martin Luther King Jr. Good luck with every thing and I hope you find the answers your looking for.