Multiple Bilateral Cysts and Endometriosis
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Hi all,
I was diagnosed with endometriosis about 10 years ago. I have it on my bladder and colon, which they cannot remove because it is too dangerous. I suffer with this daily, and have about 1 good week a month. I am currently taking Letrozole 5mg daily. Most of the treatments I have tried in the past either make me extremely depressed or extremely emotional. Including birth control.
Last Thursday I started to bleed and clot (not my period), and was having bad pelvic pain (different than my endo pain). I thought it was a small cyst rupture which i have had in the past, and usually just ride out the pain. By Sunday, i was still in a lot of pain and still bleeding, and started to feel nauseous so i decided to go in to the ER. they did an ultrasound which showed i have 4 ovarian cysts, 2 on each side. the largest one is 4.5 cm, which is bigger than one if my ovaries (which is 3.1cm). the other ovary is enlarged at 5.7cm. My pain is constant, and i am currently trying to get an earlier appointment scheduled with my GYN which is a specialist and is 4 hours from here. before i even found out about the cysts, i was planning on speaking with him about surgery for my endometriosis.
I started seeing him about 5 years ago. My GYN that is in my city had performed surgery, but i still was suffering, so she referred me to the specialist. i really liked him because his first words were "you know your body and how much pain you are in. i am going to give you options to treat with medicine or we can go in again surgically and see what we can do, its up to you". i wanted to try the non surgical route, and here we are 5 years later (4 different types of medicine later), and i am sick of trying to fight it.
so, hopefully he is willing to go ahead and do surgery to take care of the endo he can remove, and go ahead and remove the cysts as well. i honestly wouldnt mind just having a hysterectomy. i am so sick of fighting this.
0 likes, 1 reply
aitarg35939 jessw2006
Posted
As i mentioned on another post, i don't understand why you were told that endo can't be removed from the colon. Since you use the word "specialist" rather than "consultant," i assume that you're in N. America. in the States it's entirely possible that the real issue is the regulated division of labor. This means for example that certain hand surgeries cannot be done by a hand surgeon but must be done by a plastic surgeon. It's possible that the gyn is afraid that any work on the colon might lead create a need for a resection, a surgery for which the gyn may not he qualified.
If you need a bowel resection, they aren't fun. But neither is having endo perforate your bowel, and this is a very real risk.
i had everything removed, cervix, tubes, ovaries and uterus, when i was 27. That was my choice, not the gyn's. We had planned to leave one ovary but ultimately couldn't. I'm glad about that because the docs/gyns act as if abdominal surgery is such a breeze that we should look forward to another surgery in 2-5 yrs to remove the left in, troublesome ovary. It is not. i was lucky and had 27 great years before endo returned on my bowel & i needed that resected.
If i were you I'd be calling that specialist about the new issues and talking to your gyn about why she said endo can't be removed from the colon.