Multiple Bilateral Ovarian Cysts and Endometriosis

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Hi all,

I was diagnosed with endometriosis about 10 years ago. I have it on my bladder and colon, which they cannot remove because it is too dangerous. I suffer with this daily, and have about 1 good week a month. I am currently taking Letrozole 5mg daily. Most of the treatments I have tried in the past either make me extremely depressed or extremely emotional. Including birth control.

Last Thursday I started to bleed and clot (not my period), and was having bad pelvic pain (different than my endo pain). I thought it was a small cyst rupture which i have had in the past, and usually just ride out the pain. By Sunday, i was still in a lot of pain and still bleeding, and started to feel nauseous so i decided to go in to the ER. they did an ultrasound which showed i have 4 ovarian cysts, 2 on each side. the largest one is 4.5 cm, which is bigger than one if my ovaries (which is 3.1cm). the other ovary is enlarged at 5.7cm. My pain is constant, and i am currently trying to get an earlier appointment scheduled with my GYN which is a specialist and is 4 hours from here. before i even found out about the cysts, i was planning on speaking with him about surgery for my endometriosis.

I started seeing him about 5 years ago. My GYN that is in my city had performed surgery, but i still was suffering, so she referred me to the specialist. i really liked him because his first words were "you know your body and how much pain you are in. i am going to give you options to treat with medicine or we can go in again surgically and see what we can do, its up to you". i wanted to try the non surgical route, and here we are 5 years later (4 different types of medicine later), and i am sick of trying to fight it.

so, hopefully he is willing to go ahead and do surgery to take care of the endo he can remove, and go ahead and remove the cysts as well. i honestly wouldnt mind just having a hysterectomy. i am so sick of fighting this.

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5 Replies

  • Posted

    hi my name is Dee I am 27 yrs old I have stuffed from same edo since I was 21 yrs old I try almost all birth control methods pills shots and I have bad sideeffects and don't agree with me. now I got 10.5 and 12.7 orvain syst and there so pain full I have got pride for 6 months. the obgn try iud and I scared because side effects . Please is there any doctor take cyst and inside out . I in Pain.

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    • Posted

      I am so sorry you are going through this too. i do not know what area you live in. but where i live we do not have alot of good specialists. so that is why i travel 4 hours away to see a specialist. it took me 3 years to finally get my first doctor to listen to me on my concerns about endometriosis. if your doctor is not helping, do not be afraid to seek a second opinion, or even a third. continue to be an advocate for yourself. unfortunately alot of doctors are not read up on treatments for endometriosis. my first doctor only gave me one option for treatment and said there was no other options, which turned out to be wrong. when i finally saw the specialist he gave me several options that my other OBGYN never mentioned. stay strong, and good luck. nobody deserves to be in this kind of pain with no help.

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  • Posted

    hi my name is Dee I am 27 yrs old I have stuffed from same edo since I was 21 yrs old I try almost all birth control methods pills shots and I have bad sideeffects and don't agree with me. now I got 10.5 and 12.7 orvain syst and there so pain full I have got pride for 6 months. the obgn try iud and I scared because side effects . Please is there any doctor take cyst and inside out . I in Pain.

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  • Posted

    Hi jess thanks I live California san Diego . I so tried all shots pills have bad side effects I lost faith in birth control . what name of ur doctor have now what name of them. I do research on it. please

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    • Posted

      My doctor is actually a pelvic floor specialist but is trained in being able to take out endometriosis, not just cutting the top layer off like most surgeons. I would suggest doing some research of specialists in your area or close by. my first surgeon was only trained in cutting off the top part of the endometriosis, not the whole thing. can you maybe ask your doctor for a referral to a specialist? that may help you get in sooner. i live all the way in alabama.

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