Multiple cysts on liver

Posted , 4 users are following.

A recent CT scan to investivate nodules on my right lung has revealed multiple cysts on my liver.  I have had pain in the right upper quadrant in the past but didn't know what it was.  The lung consultant didn't mention it when I saw him last Monday, he only said that it was good news - the nodules on my lung were no larger.  It wasn't until I got a copy of the letter he sent my GP that I read that I was "in reasonable health but had multiple cysts on the liver".  I won't see him again for 3 months, when I'll be having a chest X-ray.  

I don't know whether I am being over concerned about these cysts, which I knew nothing about.  It wouldn't seem so bad if he hadn't said "multiple". 

If anyone has similar experience, I'd be glad to know how things have progressed with them, whether any treatment should be necessary, or any advice really.

I am overweight, but have no history of heavy drinking - I usually have 3 or 4 small glasses of wine a week, and drink water throughout the day.

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8 Replies

  • Posted

    Gastroscopy to take samples of the cysts/lesions for biopsy is what I would want or at least a very good explanation why no action was being taken.
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    • Posted

      Thanks for your reply.  I thought gastroscopy was simply for investigation of the stomach, and didn't realise they could access the liver that way.  I shall ask my GP for a referral.  For an explanation of the "no action" situation, I think my reply to carina62 might explain it okay.

      I greatly appreciate your advice, thanks again.

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  • Posted

    I have a cyst in liver which was found by chance when I had a scan for what I thought was gallstones.  After the ultrasound scan, they wanted to investigate the cyst further so had an MRI and then was discharged.  I must admit I had weeks of worry waiting for results inbetween scans etc but all ok.  The consultant said if the whole population was scanned, half would have cysts in their bodies that they would never have known they had.  What have the medics said they will do? 
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    • Posted

      They haven't said anything.  The doctor who arranged the CT scan (I have had two, one in March and one two weeks ago, and also a PET scan three months ago) is a lung specialist.  I had a deep vein thrombosis at the beginning of March, and the investigations which followed revealed calcification on my right lung, probably resulting from childhood pneumonia/chickenpox.  So when I saw him last week, he simply said it was good news as the nodules on my lung had not grown in 6 months.  It was as if he was only interested in the lung diagnosis.   I am not due to see him for another 3 months.  I really wish he had told me about the cysts on my liver then, so I could have asked him about it.  I guess as he is a lung specialist, it isn't his field.  I suppose I shall have to see my GP and hope that he will refer me to a liver consultant.  I wouldn't worry about this, but it's a bit alarming to hear the cysts described as "multiple".  I have 5 nodules on my lung, but they weren't "multiple".  It's a bit concerning.  

      Thanks for sharing your past history - hope mine is just as innocent.

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    • Posted

      I honestly think if there was cause for concern they wouldn't just leave you in limbo.  Do you live in the UK?  If you look on the British Liver Trust it explains all about liver conditions, cysts etc and it sounds to me that if cysts, whether multiple or not if benign, are left alone.  I don't think being operated on the liver is something they take lightly.  Definitely make an appointment to see your GP, voice your concerns and you may be referred to a liver specialist who can explain things.  Take one step at a time, I'm sure everything will be OK.  Good news about your nodules on the lungs.  Once you know more about things you'll feel better,  ask lots of questions, I know I have written everything I want to know down to ask my doctor in the past.

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    • Posted

      Thanks, carina, that's good advice which I shall take up.  Yes, I'm in the UK.  I'm going to try to see my GP on Friday and see where it goes from there.  Just too much stuff going on in the family to manage it before then.  Yes, I was delighted by the news regarding the nodules, but was surprised to read about the cysts in the copy of his letter, and only wish he'd given me the opportunity to ask about them there and then.  Still, as you say, it's probably all OK.  

      Thanks again.

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    • Posted

      Yes it was probably a shock to you at first like it was with me when i received my letter after i had my US scan for what i thought was gallstones as i had a mild/discomfort more than a pain, under my right rib which i still get from time to time.  In my letter it said that an 'incidental' cyst in the liver had been detected so of course i worried for weeks until after all the tests to determine it was benign but i didn't have any biopsy etc, they could just tell from the MRI scan so i should be reassured by that.  This all happened last year (2015) as i had one health issue after another coming up but hopefully things have settled now.  Hope you don't mind me asking but what did they explain about your 'calcified' nodules?  the reason i ask is because one of my other health issues discovered last year was a 'calcified menigioma' on the brain which i've been told not to worry about but i have a follow up scan in a couple of weeks to keep an eye on it but i was told that 'calcified' actually meant it had gone hard and stopped growing.  Would you agree with this from your diagnosis?  thanks

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    • Posted

      Yes, carina, that's what I think has happened.  The nodules have been CT scanned in early March and two weeks ago, there was also a PET scan which ruled out cancer about 3 months ago.  There's been no growth or change in the nodules which seem to be stable - he'll arrange a chest X-ray in 3 months just to be sure.  It's thought that they are due to scarring from a childhood illness - chickenpox with the added complication of pneuonia.  I remember being pretty ill with chickenpox, but the pneumonia was not diagnosed at the time.  Apparently this isn't uncommon.  At any rate, we're talking about an event nearly 60 years ago.  I did ask why the nodules didn't show up on the chest X-ray I had as part of my medical when I entered the teaching profession, nearly 20 years after the chickenpox, but was told it took some time for the calcification to build up.  But I guess once it has, that's pretty well it.  I've certainly seen no difference since early March.

      I know what you mean by one health issue after another - mine started out as just a DVT, since when I've worn a path to the hospital with all the blood tests, etc.

      I wish you good luck with the scan - my guess is that if it is calcified, you should be okay.  Best wishes.  

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