Multiple Fibroadnomas +11.5cm mass

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I recently was diagnosed with Fribroadnoma Breast Disease. I underwent surgery last week to remove the largest non cancerous tumor of 11.5cm. In addition I am coverd from above the nipple in these masses - both scatterd and beaded. Now - as far as I know the breast surgeon removed what he could. At 24 my question is what drives these masses? Can they be controlled to a degree....in terms of the stalling of the growth? The doctors have a questioned and concerned case only because do they rarely see an individual of my age that has this....little alone has these tumors that grow in an excel rate. I'm in a way a little stuck because Im not sure where to turn to etc. I'd love to hear your feedback...advice...etc. I'm so glad I came across this forum - so much detail...support and answers

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  • Posted

    Hi 

    I have had these but not to the extent you have ..when I was 22 had my first removed and it had grown in 6 months from a pea size to a size of a golf ball . Then age 40 I discovered after losing weight another large lump which ended up being 3 that had been there so long they had joined together all benign all removed .

    Then 6 years ago age 48 found another the size of a tiny pea it was biopsied and I was told it was a Fribroadnoma it was monitored but kept growing but they were not worried to leave alone . 5 years later it had grown too big 8cm and now it was biopsied again and I was told it was a PASH . If you look up PASH disease it is a benign breast disease hormone stimulated a fairly new disease often misdiagnosed at Fribroadnoma but it can spread through tissue or grow as a lump. The lumps can grow as large as yours if not larger . Might be worth asking if you continue to get these lumps if you have PASH disease . But both diseases are stimulated by oestrogen and are more common in younger women or peri menopause . Not sure if this has helped but might be worth looking into .. 

    Sally 

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    • Posted

      Hi

      i didn’t as I just had a large mobile lump but when u research it pain is very common because it can spread through your breast like tentacles ..trying to explain it in non medical terms .. if it does this then pain is very common .. it is not cancerous but googling it lots of women undergo surgery not for the risk of cancer but for the discomfort.  Now I am menopausal my oestrogen levels have dropped so I have been told this halts the disease.  I was diagnosed with PASH 2 years ago and there was very little info on the internet about it .. now there is lots .. try not to worry 😘

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    • Posted

      Thank you,

      I'm 49 going thru perimenapause and in late May of this year I started to get a pain in my left breast , it hurt bad, but my doctor could not find anything, the pain has subsided but close to my period it would come back and it starts with a tingling feeling or a little shock.

      I waiting for my results from my ultra sound and mammogram. Hope all is good, I have dense breast tissue so it could be PASH

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    • Posted

      Hi 

      Perimenopause is a tough time as one day your oestrogen can be low the next high and painful breasts can just be caused by these hormone swings . There is a really good website that lists all symptoms in the perimenopause and why you get them how you can cope with etc.. 

      i found it really helpful herbal remedies etc ..

      i will list it on my next message as it will take 24-48 hours to be cleared .. 

      try not to worry .. 

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  • Posted

    Pseudoangiomatous Stromal Breast Hyperplasia  
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    • Posted

      Thank you very much for your response. I'm sure the breast surgeon is having it tested etc. In regards to PASH...What were your next steps? Were you advised to go see a specialist /clinic? How do you regulate these hormones?

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    • Posted

      I was told to avoid HRT, contraceptive pill etc .. for me I was so near to my periods stopping that I knew my hormone levels would start lowering . 

      If you have got PASH your breast surgeon will advice . 

      Hope you get good aftercare . 

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