Multiple kidney stones

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Advice please! 

I have had ongoing UTIs for around 6 months. I was taken into hospital last week and they diagnosed kidney stones in both kidneys. They are small ish but are clustered together so are 12mm, both sides. I am waiting for an appointment to see the urologist now. But I have the worst pain in my back and in my lower stomach (groin area) I’m worried they’re trying to pass. Has anyone had the laser treatment? I’ve read up on it and it states they’ll only do 1 kidney per session and it takes up to an hour for 1 stone. I have 8! Please help.

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10 Replies

  • Posted

    Hi Joanne,

    I can only relate my experience if multiple stones .

    I had a double blockage with 5 stones in both kidneys .

    I underwent emergency surgery to stent both kidneys and at a later date they went in to laser both stones in the tubes . ( with the stents being in and me being in a catheter for a month those stones had apparently passed . )

    but in my experience they did both tubes in one session)

    I still have 3 stones 14 months later but seeing a lower pole kidney stone research team soon about dealing with those ( hopefully )

    hope your pain passes quickly and your stones are sorted soon.

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  • Posted

    Whether the stones are trying to pass depends how big they are. They seem too big to me but I am only guessing. I had several stones in my right side 27mm. I struggled all last year and went to 4 or 5 different urologists who just kept referring me to someone else!! Eventually a urologist in Cheltenham referred me to a urologist who Bristol who agreed to do keyhole surgery. Had surgery at the beginning of December last year.

    He managed to get to my stones with the use of a flexible scope and treat them with laser.

    I had stent in for a week and catheter for 3 days.

    It was complicated because I have horseshoe kidneys (they are joined together).

    However now feeling much better.

    Hope they managed to sort you out soon.

    Take care and keep in touch

    Praying for you

    Sarah xx

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    • Posted

      Thank you for the reply. The doctor did say they were too big to pass as both kidneys have 4 equating too 12mm as they are all together. The pain is getting too much now. Tried calling the hospital today but the secretaries must be off with it been bank holiday so I will try again tomorrow. 
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    • Posted

      You should not have to do this but I'm afraid the reality is you have to keep contacting them.

      I had to do this several times.

      Hope you manage to get hold of them.

      Hang in there.

      Sarah xx

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  • Posted

    Hi Joanne 

    Poor you. I am 37 I have had 5 stones in the past 18 years. My first stone was done under the ultra sonic blasting or something along those lines. I had it in my left kidney. Was probably 6mm in size but enough to cut my water works off on the left kidney. Back pressure on the flank was unreal due to build up of urine. I actually watched them ablate the stone on screen. Trust me it doesn’t take 1hr per stone. The equipment they have is so sophisticated they can pin piont the area and I would say 10/15 minute concentrating on one area at a time.  Sounds the one you have toward the bladder or groin area is definitely on the way out. Just past one myself couple of weeks ago. For some reason you feel like your the only one in the world suffering with these things but your not. I suffer with calcium oxalate type stones. Drink plenty of water and plenty of pure lemon juice which has natural citrate this helps to smooth down the stones in order for them to pass not necessarily break them up. Suggest you start looking at your diet. I eat very healthy but foods high in oxalate should be avoided such as spinach and nuts like almonds

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    • Posted

      Hi, thanks for the reply. Did the blasting hurt? I am dreading it if they have started to try and pass as the doctor said they’re too big. I always drink lemon juice so have been trying to drink as much as possible. I am a vegetarian so I eat lots of fruit and vegetables. Hopefully will get it sorted ASAP. Pain is indescribable. 
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    • Posted

      Hi Joanne 

      I know trying explain the pain to someone who hasn’t  had them before is something I don’t think they will ever comprehend. Obviously woman do seem to tolerate excessive pain compared to men so totally understand how your feeling at the moment. When I had them blasted it wasn’t the nicest experiences but apparently I fell lucky on the day when I had mine done. Which sounds strange I know. With me I had the stone pushed back into the kidney because it just simply was never going to pass. This was done under general anaesthetic and a stent was fitted that I never had clue about until the doctor told me when I came around. That very same day apparantly I was lucky in fact I got them blasted whilst I was awake this operation was carried out in the afternoon. Normally this done a day after. Not everyone’s circumstances are the same though. It could be yours are in place that can be blasted without having a stent fitted so don’t get worked up about it because you might not need it. The blasting procedure felt like a dull thumping feeling, suppose like a heavy massage in one area. It’s really interesting you would be awake for this. Ask to watch if you can. It’s mad! Once this is complete, it’s a matter of monitoring you then and passing as much fluid as you can over the next coming weeks to rid the fragments. Don’t be too concerned about what comes out it’s all part of the process. As a bloke you could imagine what I was thinking. Just not normal seeing something coming out like that. You will get passed it pal. I know it’s upsetting but try a little to be positive and talk on here 

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