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Im 37 and had knee surgery 2 years ago.afterwards i developed the rare complication of multiple.blood clots on both lungs. I presented with sweats, riggors, fast heart rate (180) and shortness of breath. It was very scary i absolutely thought i was going to.die. Two years later though and whilst alot better in general i still suffer with recurrent symptoms. If i have a cold i can get quite breathless with it. Im.not gasping but id describe it more accurately as air hunger. It is a very uncomfortable sensation and my heart rate will be elevated at the same time. Also u can get episodes where ill get riggors and my heart with pound and ill feel shirt of breath my mouth go really dry and ill need a wee constantly..it can last 20min to several hours. In between these weird episodes im very well and noone else really apart from my family knows how unwell i can still be. The specialist at local hospital failed to diagnose my clots so i sufferred for 5 days before they knew what it was. He doesnt seem.bothered and barely raises an eyebrow when i mention these weird horrible symptoms i still get..surely 2 years on i should be normal again by now?!
Part of me wonders if they are recurrent clots but just smaller. Im on rivaroxaban lifelong so that seems unlikely but i guess possible.
Anyone had any experience like this? Thanks so much.x
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