Muscle aches

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Has anyone experienced muscle aches on Topiramate (back of shoulders and neck/head in particular) with a unpleasant tightening feeling in head?  Not feeling great on this although I hVent had any migraines in the 3 weeks since being on it, I really don't feel myself and wondered if it will get better?

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  • Posted

    I was on Topiramate for a couple of years and have just come off it. I ached the whole time and assumed it was the Topiramate but now that I'm off it, I still ache so it is difficult to say whether the aching is just a development associated with migraines or the drug! It is odd that I have been reading a lot of posts about aching joints, even from people taking different drugs. I wonder if there is a group of us suffering from a specific sort of migraine that also attacks joints?
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    • Posted

      That's very interesting., I have suffered from aching joints since the menopause but HRT seems to have helped with this until I started this drug butt the ache is specifically around the neck and shoulder area.  Can I ask why you have come off Topiramate now?  Have your migraines returned?  I am still weighing up the benefits of this drug against the side effects of which there are many.
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    • Posted

      I stopped topiramate because it didn't help my migraines which have got even worse over the last few years. I also found that I was becoming a zombie - I couldn't remember words and was in a daze most of the time. My husband agreed that I was 'spaced out' while I was on it. I did also have a sort of heaviness in the head for weeks on end and this has gone now I've stopped taking it.

      I have just gone through the menopause and am not on HRT - so maybe the aching joints are just the menopause and not associated with migraines?

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  • Posted

    Hi cindy seems like everyone who has replied has talked about general aches but not really answered your question. Hope ur feeling better now. 

    I felt like this when I was taking propranolol for migraines and it turned out the pressure and constant ache in the head, shoulders and neck was a tension headache and no painkillers will touch it. It could range from a bad head ache to just a dull ache I could ignore. I had to come off the medication and now take the toprimate for my migraines so am going to have to see how I go with this. 

    I suggest you go back to your GP and mention tension headache to them as there is another drug u can take instead. 

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