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I have suffered from a 'heaviness' in both lower leg muscles and both upper arms which comes on during exercise but also felt at rest and is worse in heat. I felt the symptoms in my lower legs first (in 1995 when i was 21) whilst jogging then 3 years later in my upper arms when swimming. In both cases, it was sudden onset. The symptoms reached a peak in 1996-1997 when i couldn't even stand up and moving around was exhausting. Since, the ache has eased but is present every day. It's not painful, there's no numbness, pins and needles etc... it was just a very weary ache. I still keep active but within minutes of starting a run, my legs become very heavy, lethargic. It feels like running in treacle or running into a strong headwind. If can manage 5 press-ups before my arms feel like they are on fire.
I have seen three neurologists over this time, had MRI legs, neck and spine, spine with contrast, cardio-vascular investigation, exercise ECG stress test and Echo, fitness test by exercise physiologist, ruled out PAES,tried myofascial release, Buteyko, Bowen. CK levels (pre and post exercise) normal. Replaced mercury teeth fillings. Tried variety of supplements e.g. d-ribose, carnitine, BCAA, Co-enzyme Q10, NADH, Sam-e.
Red flags -
Marked reduction in muscle fibre fat content; Muscle biopsy, 2002
DHEA was 0.21 (reference range 0.25 to 2.22); June 2017
Cortisol levels normal
Possible Underactive thyroid (T3/T4 ratio is 0.60)
Low iron levels
Intermittent chest rash
Peculiar speech defect - sometimes struggle for fluency. Weak voice.
Keto diet (<20g carbs per day, high fat) for three weeks made symptoms considerably worse. Once resumed high carb diet, symptoms immediately improved.
Leg muscle can 'throb' even when in bed.
Running barefoot easier
Hot baths or showers make symptoms worse.
Just going up short flight of stairs brings on the heaviness but as soon as i am at the top of the stairs, the symptoms fade.
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