Muscle spasms in lower back... help

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I have been diagnosed with AS for 6 years now and i am only 24 years old. I have not been able to control the pain in my lower back for some time now. I have been told that my physio is unable to help me any further. Recently i have been expericening severe muscle spasms in my lower back/bum and not sure whether this is normal or not? please help

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  • Posted

    Hi clare i get them also just let mine settle down on its own .i will you what i get alot i can be walking and my left knee gives way and i dip down the wife thinks its funny im not thoe
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  • Posted

    Hi Clare, I was in my 20s when I was diagnosed (52 years old now). I had terrible pain in my lower back and butt too. I took different anti inflamatories until I found one that controlled the pain and then once I was able to move a bit, I walked as much as possible which really helped. I still have to switch medication when one stops working but I still take them every day - and if I start hurting, I increase my exercise. I suggest you take as much medication as your doctor recommends and move as much as you can!

    Good luck

    Bridget

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  • Posted

    Hi Popeye and Bridget, thanks for getting back to me. I am yet to find anything that actually works for me. I have been on a study,entacept and now humira and the doctors are now planning on changing this again. The pain is so bad now that I am on Naproxen 4 times a day and codeine 4 times a day. Trying to work a full time job with no sleep and this pain is getting too much. I have even asked for assistance from the government but i have been rejected. I think the stress of all of this is making it worse 
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  • Posted

    HI Clare.  Im sorry you are having so much pain, I can sympathize.  What has helped me good pain management with medication and exercises.  Also I did a Pain Management Program that went for 2 weeks.  I learnt everything about the different types of pain, the psychology of it, exercises, hydrotherapy.  I use a TENS unit and a small electric heating pad when I have flares.  I also take sulfasalazine, tramadol and morphine patches and anti-inflammatory tablets. I get pain in my feet, knees, hips, butt and spine, and hands and pubic bone.  I have gotten used to the pain tho when I have a flare it makes it harder. I have had to give up my parttime work after I also got polymyalgia.  Now having less stress has made things easier.  Meditation certainly helps to cope with the pain.  I hope this helps.
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  • Posted

    ps I also use a polymer gel slab when i am in the car - helps lessen the vibrations - vibration made the pain in my butt and spine worse.  The occupational therapist at the program suggested I give it a try - I use it all the time.
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