Muscle strength PMR
Posted , 13 users are following.
I am reducing from 4 - 3.5 using the DSNS method. I had the most fantastic pain free day a little while ago and thought "does this mean I'm on the mend". managed to do a few things that morning then got realy tired in the afternoon and next day had muscle and joint pain again so I am a bit perplexed. I didn't do anything that much, however I seem to have little to no muscle strength so everything is a big deal. Has anyone out there had PMR and now has not and if so how long did it take for the muscles to regain their normal strength ie. pre PMR and how did you do it?
1 like, 29 replies
karen28161 denise76179
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kay97415 denise76179
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I am the same feel good some days but if I say just walk around our small local town in the afternoon have aches in my hips and legs for a few days and need to stay in again. I have also had the thought that our muscles apart from the inflammation need building up again but perhaps that's only something we can do once free of PMD and off the pred.
vanessa66630 denise76179
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MrsO-UK_Surrey vanessa66630
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vanessa66630 MrsO-UK_Surrey
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EileenH vanessa66630
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I'm sorry you feel annoyed I didn't respond to you but even I have holidays! If I don't see a post for more than a few days then I tend to assume it may not be worth it, especially if it was an urgent plea - and after a week away I have something like 300 emails or more to clear just for the forums! On that note - from the end of this week I'm away and very likely will be unable to get at my emails for a few weeks since China has banned google!
vanessa66630 EileenH
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MrsO-UK_Surrey denise76179
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denise76179 MrsO-UK_Surrey
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Thanks
lodgerUK_NE denise76179
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Start walking every day, start with just 10 mins, there and back and put the time up slowly day by day.
Don't sit down for more than 1 hour at a time, just get up and move even if it is just across the room. And that applies when sitting in front of the computer. Use an alarm clock if necessary.
One thing that has helped many people is Bowen Therapy. It is well worth giving it a try. Yes, it means paying for it, but the best of it is that you book three sessions in consecutive weeks and if it is not working for you within that time, the therapist will tell you. So it is not a money making machine. I finally gave in to some nagging and tried it as I was heading back to a wheelchair - white witchcraft - as I call it worked for me.
If you can find a Nordic Walking class, that can help enormously as long as you tell the instructor you have PMR.
Tai Chi, but you need the right sort of Tai Chi.
And finally, yes PMR does go into remission but remember you are that much older so your whole body has aged.
I do know men who have been younger ie in their 50's who have gone back to marathon running - something I could not do ever.
A member of one of the support groups, started a ' gentle walking group' who meet once a week and end up in a cafe. People without PMR but who are friends also join in, the emphasis is on GENTLE.
denise76179 lodgerUK_NE
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lodgerUK_NE denise76179
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Could do with some of your sunshine here.
denise76179 lodgerUK_NE
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EileenH denise76179
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The feeling of a lack of power in your muscles is something I've struggled with ever since the PMR started - but it is improving now I'm on a low pred dose. Whether I'll get back to being as strong as I was before PMR I don't know - I've had it for 10 years! However - one of the things I feel very strongly about is that we should be assigned to a physiotherapist right at the start to be given light exercises to keep the muscle tone up during the course of the illness and while taking pred.
There are simple exercises we can do but using very light weights and few reps to start with, building up VERY slowly - as MrsO and Lodger have emphasised.
denise76179 EileenH
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EileenH denise76179
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Even going to the pool and walking in the water is a good start and using the water as the resistance to hand/arm movement is good - that is where I restarted with the hospital physio here using the hydotherapy pool and maybe your physio could use that approach? Though it is something you can do alone if you have a warmish pool handy.