muscle weakness

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Hello everybody

Since going back on thyroxine I've developed severe muscle weakness. It is so debilitating that I can barely get around. I came off thyroxine around 7 months ago because I couldn't handle some of the side effects associated with thyroxine.

I recently saw an endocrinologist at the hospital and they are going to see me every 6 weeks to keep an eye of my thyroid levels. Either way I'm just told that I have to take thyroxine. Surely there is no need to suffer in this way. I have three children to look after and I can barely do anything. In the last couple of days I have developed pain in the right side of my face!

Have any of you suffered this? Do these side effects ever go away or do I just have to live with it?

ms

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4 Replies

  • Posted

    i had the same with muscle problems i have been taking devils claw which has been great it is natural but any medication natural or not should be taken only with advice from your doc or pharmasist...i am also now taking a diuretic as i suspect some of the problem is water retention. dont give up i am almost back to normal and i was in a bad state ....go look at the post thyroid v old git syndrome and you will see.dont sit back...fight it by getting the knowlege it is all out there....good luck
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  • Posted

    Hiya Ms

    So glad you have made an up to date entry as I think the last time I spoke to you it was july 07? Anyway I am so glad you have advice from a endocrinologist x, can you not ask him/her your concerns hun? as I think in general your body as you haven't been taking your thyroxine your body has been working overtime and so the levels have to get right before you feel better, it can take a while, but either way your body needs this medication to function properly. I have had an under active thyroid for ten years! and my levels still fluctuate from time to time.

    On the other hand I have been aching for over a year, literally from head to toe, (thought it was in my head) but I saw a consultant last week and I have Fibromyalgia, my Gp thought I had Polymyalgia at first but my blood SED rate wasn't high enough (34) I am 35 too so too young apparently for this condition . So your aches might be a secondary condition, I am no doctor but I am just expressing what I have been through, tell your doctor and he/she should do the tests accordingly, If he/she doesn't listen (as I had this ) change doctors (I did) and my present Doctor thanks to him got the ball rolling to get my diagnosis in the end!!!!!!

    I have been checked for Rheumatoid arthritis (another auto immune disease) and other blood tests, along with x-rays.......so don't quit as Jack says \"knowledge is Power\" I had an X-ray and showed I have degenerative discs which as I had pain and no surgery would help at the moment..... I went to pain management, the first appointment was a waste of time as the \"Registrar\" was obnoxious and patronizing , telling me he had a broken coaxic and didnt need meds and I was to get over it and get a life, I didnt want to see him again obviously and so the second Pain management was with a consultant (last week) he was very sincere and sympathetic .......... along with his assistant nurse.

    I hope you feel better soon, hang in there xx It took a year to get my diagnosis due to unsympathetic people in the medical profession, luckily out of 7 professionals I can say three listened!!!!!!!!!!MY Present GP, my Physio and my present Pain management consultant.

    Kind Regards

    SES

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  • Posted

    Hi

    Thank you both for replying. I'm trying to be patient until my next appointment which is the beginning of April. The severity of muscle weakness has gone down and time to time my joints ache. I'm trying to be positive about everything but find is difficult at times. It's difficult just being at home and doing the same routine day in and day out. I hope I feel better soon so I can get on with my life and start doing things again. I've started going to the gym twice a week and that helps me to feel better about myself. I hope the same for you too.

    ms

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  • Posted

    HI MS

    Hi there MS I have had problems recently as recently expressed, go and see your GP as there are other auto-immune disorders that \"can\" link to thyroid disorders so maybe you need further investigations? I am no doctor but I would maybe check if your thyroxine is at the correct level? and if this doesn't help then see your GP, you sound like you are suffering in silence? I have fought for my diagnosis arthritis and fibromyalgia, as after all we know our bodies and we feel the pain!!!!! its just a nightmare when we are banging our heads against the wall as some of the medical profession don't want to listen, luckily after a year I got help!!!! I do hope you feel better soon xxx Please don't hesitate to keep me posted x

    Take care x

    Kind Regards

    SES

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