muscle weakness

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i have CFS and lately my muscles in my limbs, especially lower legs are weak and shaky all the time, feel like there is no energy in them, and walking about is more of an effort, am just wondering if there is anything that can help with this? am walking a lot slower with no go in me at present. I am not over doing things, i sually walk dog but have reduced this signisficantly. I am sat on m y bum all day, and have been going to bed early. I have been getting reflux symptoms daily too, feel bloated all the time and umcomfortable, even though am taking omeprazole every day, double dose. Last friday was a very bad day, i was floored at work, they didnt send me home, and i really struggled to get through the day, my body was so weak. I just wondered if other had this and could possibly advise,

Thanks

I have thought of ringing ME clinic up, to be honest I think whats the point, what can they do.

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13 Replies

  • Posted

    Hi Nichola, I'm really sorry you're suffering so much at the moment. I had a similar set back a couple of years ago. I joined the local leisure centre where they had toning chairs. They do the exercising for you with no effort from you. It strengthens your muscles. It really was worth it. I also used the swimming pool for gentle exercises which I couldn't do out of water. To be honest, the pool was, and still is, the only time I am pain free. Very refreshing! Just floating on the water is a treat; and treading water is very good for the whole body. My doctor referred me to the leisure centre and I was helped by the team there who gave me the exercises to do and monitored me. I hope you have this facility where you are.

    regards.

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    • Posted

      Thanks for quick reply, unfortunately when i go in the water, weirdly it makes me ill about a week later, virally. Used to go swimming years ago, and i think its due to the cold water. I am same on holiday if i go from sun to dip in water, within a week a i feel ill with vertigo and dizziness, very strange i know, i am intolrant to cold, so i wonder if this is why, i have poor circulation . I do walk normally with dog , but the only way i can describe my symptom is, as if i have low blood sugars and you feel shaky, yet i have ate.x
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  • Posted

    I have this same issue...feels like going up the stairs takes so much effort.
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    • Posted

      its not good is it, i have booked into clinic next week, does your heart beat fast too as if your doing some thing strenous when your walking?
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    • Posted

      Not necessarily when I walk but going upstairs and downstairs makes me feel like I'm exercising fast heart rate feel like I'm loosing my breath and I get that muscle burning feeling like I'm doing squats or weight lifting in my legs.

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  • Posted

    Hi Nichola,

    Omeprazole and other proton pump inhibitor drugs can affect how you absorb B12, and deficiency of this can wipe your energy out. Would be worth talking to your doctor, I think (and hoping he/she is not one of those totally ignorant about B12, too many of those around, unfortunately.) More information on the Pernicious Anaemia forum on this website, or at the Pernicious Anaemia Society website. How are your iron/folate/VitD levels?

    The other thing I have found helpful is cutting out sugar and eating less carbohydrate, that helps me with bloating, and energy levels too. Hope you find something to help you feel better soon.

    Jean

     

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    • Posted

      thanks so much, my b12 levels were normal in  200 range, my vit d was 36 last time so is insufficient i did get prescribed vit d supplements for several months then they were stopped, but i do still have them at home and have wondered if i should re start them and see if these help, they are weekly . My diet isnt great, i do get low blood sugars quickly and often eat biscuits ( only 1/2 day not every day) but do have carbs most days. i did wonder if i should try a supplement , read few CFS books but loads of types of them, but can be quite costly too, and i wonder if they would work.

      i am booked into ME clinic next week for review, so may wait to see what she says. Thanks Jean

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    • Posted

      Hey again sweetie r u taking anything right now for cfs? I've tried all of the supplements for cfs and it is costly and was ineffective for me. If I also may ask if u have any digestive issues. U can message me if u don't wasn't all of that up on the forum

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    • Posted

      Hi, am not taking anything as yet, i have thought about supplements but they are so costly, the only thing i take for my stomach is omeprazole as its always  bloated and uncomfotable, feels as though its being squeezed if that makes sense, even a bannana making me bloat and feel uncomfortable. bought some gavison too . x
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  • Posted

    Hi nichola,

    I have had ME for 7 years and its always fluctuating so what worked before may not be working anymore or you get better then cant figure out why you had a big relapse even though you haven't done anything different, in my time i have discovered that people with ME have a problem detoxifying and accumulate toxins and many other disfunctions, the main thing to do is do not exercise only walking a little every day get as much sunlight and fresh air and eat regular high fibre plant based food. and take high doses of vit C gradually increase the dose from 500mg -1000mg or 2000mg this helps with detoxification and energy levels this is tje most important thing to take in high doses because it's literally given me a new lease of life so when im realy bad it take more of the vit c, vit c cannot harm you but should be taken with vit b complex to stop vit c from depleting it, so if your in a lot of pain and extremely weak and bed ridden take more vit , take zink for immunity and magnesium citrate powder to help your body to relax and sleep at night, only take this in the dose it is recommended as it can upset your stomach and be dangerous in high dose, drink plenty of water but not washing lodes of it back because it can upset your stomach and ginger and fresh apple juice and juiced celery give a good energy boost.

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    • Posted

      thanks Kathy, i will buy some vit c and b complex and try that, i drink lots of water in day as constantly thirsty, i believe this is also a symptom of ME. I do try walk most days when i can, not been able to do these last few weeks, its only gentle walks on flat. But i do like to get out and get some fresh air , i felt bit better yesterday, not sure why, i had more energy and felt good after weeks of shaking and muscle weakness, what a difference to my personaility too when feel better, but i was shattered by 8pm so went bed, and only woke at 9, so must of needed the sleep. x
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  • Posted

    You should tell your employer that you have this illness, you should never work when you're at this level, you need to stay in bed until your energy picks up, when you do get back on a level you need to pace yourself buy doing little and often, if you had a job from home you could take a nap for 15 min throughout the day, this illness is all about energy, people without ME have spare energy that keeps them going but people with ME need to keep topping up before they run down, so there are a few rules you need to go buy, reading more info but i would avoid these people who promise a cure on line, iv come across a lot of people who have spent all there savings on these programs like the lightning programme cost my friend thousands, you just have to come to terms with it and be patient and not over expend your energy in any shape or form, i wish you the best, and hope your feeling better soon x.

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    • Posted

      thanks Kathy, i try not to go off sick, i do push myself to work when bad, its a sedentary job, but i do struggle, last friday i had to lie down in day for an hour at work, i dont want people to think badly of me, they know i have ME and know when am bad, i should of told them i was going home, as i struggle to function at work, my OT says same as you. BUt i feel so so guilty if i go off sick, and worry what people think of me. I am a nurse so dont want to let patients down, that part of my problem with ME triggers as my personaility causes relapses because i try to hard to please others. I also have aniety and going off sick majkes me feel worse, catch 22 realy. But when am bad at work, i know i cant do my job as well as i can when feeling well, ib have to leave things till am feeling better. sad

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