Muscle weakness in upper legs

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im sorry im posting so much i just cant do this no more new symptoms just keep coming on top of everything else, im 6 days from cycle i dont know if its coming i usually get sore boobs to alert me its on its way not this time. i been having this all over muscle weakness feeling its scaring me my upper legs is the worst and muscle twitches. i cry everyday most of the day i cant sleep its like since those two cycles in November more hell has been unleashed upon me. i literally cant take much more i dont want to do this no more. please god tell me there is others out there dealing with all this 24/7 and does it really ever get better

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  • Posted

    Yes I definitely get this, it is alarming at first, but it cycles itself like all the other nasty symptoms and really they're all alarming.. But yeah feels like you did a ton of sqauts at the gym but didn't.. Jello rubbery legs so awful, I've been getting this for 3 years now every month lasts a week or 2

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    • Posted

      its just getting so hard to keep going and scary crap keeps coming, three years for you dealing with this oh lord i dont know how your doing it. i pray for strength everyday and for no more to be put upon me. do you find anything that helps with this?

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    • Posted

      Hi Pamela,

      Don't worry about posting so much, it's what we are all here for. I'm sorry you're suffering with all of this. When I wasn't on hrt/meds it was just as you say, everyday something different and scary and I used to get the feeling of weak legs... Still do sometimes. I did wonder though, you responded to the closed thread to say you have UC? I wondered whether the weakness and twitching could be linked to a deficiency? I had cramps and twitches when low on b12 and iron. It may be worth looking at? In the meantime hang in there Pamela you're doing an amazing job of coping with it all xx

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    • Posted

      no Pamela I haven't really found anything to make the leg weakness better or any of my symptoms for that matter other than, to tell myself I know I have to go thru this I kniw unfortunately my symptoms with all this seem to be very bad and scary and to just let it run its coarse, it is very frustrating when you feel okish for a few days then bam your socked with another set of monthly crap..I guess for me its like mind over matter like when you deliver your baby and they teach you to use a focal point and breathe thru all the unbearable pain, its almost like that we have these unbearable symptoms that we must make it thru so I try and try to ignore or keep busy as best as I can to get thru each and every set of them because they won't just go away only way is right on thru them,, and if they are really bad like an unbearable migraine where I'm rolling around practically vomiting if not vomiting from it then I go to bed close the curtains make the room dark and turn everything off and wait for it to pass..these are not easy times for all of us by any means.. Well I hope you feel better soon. Hang in there..

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    • Posted

      yep, feels like ive had a workout at the gym but haven't. I can walk down some steps and 10 minutes later feel the burning and weak feeling. it's complete madness! like alot of the other symptoms it comes and goes. its one that I could understand beong linked to hormones, they def affect muscles. I honestly dont know how we keep going thru all this havoc beong wreaked on us?! sigh

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  • Posted

    Hey Pam, I just asked Tess about you the other day. Sorry that you aren't feeling better . But can you believe that i was just googling about weakness ? Ive been having the weakness in my all week, especially in my legs. I just had a bm ( sorry may be tmi) and I got extreme weak and shaky afterward. The weak legs are there when i first wake up in the morning. I can be ok one minute and out of nowhere the muscle weakness just hits all at once. I haven't had a period in 4 mths but this would be around the time I would be ovulating is when i get hot flashes, etc. I can't say a certain time is worse because to me its seem to be all month long. I know what you mean about can't take no more, it has taken a toll on me mentally. You know we have followed each other on fb and no you are not the only one who's going through this almost daily and its been almost 3 yrs for me.

    I don't know what to do anymore, I know everyone keep saying it will get better or just hang in there but when you have these symptoms hitting you left and right and daily it is so hard. I understand Pam how you feel.

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    • Posted

      aw mary ive missed you im back in Tess group are you? and yes its very hard left and right something new on top of everything else. mornings is so bad lately with muscle weakness its the scariest thing. i have strength its just so scary and i feel like i cant move my legs like its an effort. i just recently went back on Facebook i left for awhile needed a break from it. im tired of waiting for it to get better and the not knowing when i cant handle i cry everyday all day mostly i dont know where the tears come from as my eyes and everywhere else is so dry. hiw to function in a nonfictional body is the hardest thing i never dreamed ever feeling half this horrible scary things. you can always message me on messenger if you ever just need to vent i talk with Tess alot it helps to comfort each other at breaking points and i have those daily since Oct.im so uncomfortable in my own skin it just burns all the time now then cold chills then back to burning hardly sweat just underarms. my head constantly feels floating and pressure idk how to deal with this bizarre crap. im praying for all of us daily i just cant understand the point in all this suffering to just lose a period. god help us get relief and feel semi normal at least

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    • Posted

      what kind if doctors have you been too i think its ridiculous that you have all these symptoms and they say nothing going on! i would go to endocronologist they will test it all everything your prigesterone estrogen cortisol all if it ! i went to a hormone replacement doctor ince found out i was low on progesterone estrogen dominant low dhea iron vit d and more unfortunately inonly went once cause it was out of pocket and rediculous in cost she did give me progeaterone but only on it for 3 months cause i didnt go back i eventually went to and endo doc and she told me i was definitely in peri and now my estrogen was starting to drip cause my fsh was high now so just to make tourself feel better ibwould go i dont kniw whatbelse you do but i know that we can get so crazy and anxioys from one stmptom that can cause another and so on !

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    • Posted

      here i cant go see any specialist without a referral and as long as my labs is normal she wont refer me without a cause everything is anxiety to her, she not my dr no more im dr Hunting. my thyroid everything is normal i cant take birth control im allergic and hrt i cant do so what is left really for relief?

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    • Posted

      did they test your hormones you sY uts normal but what is normal hust thyroid obciously hormones are not normal if yiu feel this way if cortisol is high or low you will have alot of symptims coryisol is tested theu urine for 24 hours did u do that? where ate you that u need referral for everything? there ate natural remedies as well too and you can go online and get kits to rest certain issues if u wsnt i dint kniw of that is feasible for you or not

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    • Posted

      Hi Pamela

      None that I can name but I've been to a Chinese herbalist a few times and they made up batches of tea..... It tasted absolutely horrific, but it was really good. Also had the acupuncture which can be super effective xx

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