Muscle weakness, muscle wasting, muscle atrophy
Posted , 3 users are following.
I live in N Calif. Two years ago after the huge fire in Santa Rosa, I tripped and landed on the side of my dresser hurting my ribs. Didnt go to doc, wasnt all that bruised. 2 wks ltr i could feel sloshing in my abdom area. Went to Kaiser they saw i had internal bleeding. They put a drain tube in my side but the bleeding got worse. They had no Thoracic surgeon. i coulnt be transferred to SF because i was to critical.
I went to Memorial Hospital in town. They did emergency surgery and fixed it. Prior to that i was in pretty good health, but it was obvious i was slowly losing weight. Losing weight was never easy for me.
Two months ltr we were into the new year. we had dropped Kaiser after 32 years because they nearly killed me.
In Feb last year i went to a new dr near Memorial because i just wasnt feeling well.
I felt tired, and run down, not myself.
And I was still losing weight.
A lot of weight.
im normally about 155 lbs.
My new doc sent me to every specialist for the next year. Including Oncology.
It wasnt cancer.
A year went by and no diagnosis OR sense of urgency at all from all the docs.
In NOV of that year out of no where, i was rushed to the hospital with an ulcerated colon.
Aha! Could this be the culprit?
I was in sepsis b4 they got me to surgery.
Another complication.
But i got through it.
Im still healing from it.
And the weight continued to plummet. I was eating, but still losing.
At first I was slim and trim but now nearly my entire muscular system is so
diminished i am a walking skeleton.
No exaggeration. I am 5'4 and 106 lbs.
No one knows what it is?
I am desperate. I FEEL LIKE MY BODY HAS BEEN FEEDING OFF ITSELF.
My drs are frustrating. I show them my bag of bones that used to be my body.
No one seems worried.
What has happened to me?
This is going to kill me if the cause isnt discovered.
Has anyone experienced this?
Thanks.
0 likes, 2 replies
AlexandriaGizmo jillybean123
Posted
First question is are you eating adequate calories, have they done all the blood test, I'm presuming that they would have, it sounds like some kind of malabsorbtion with the weight loss, have they checked for that
lisalisatheone jillybean123
Posted
hi. first of all, i am not a doctor so never take my advice or comments as verifiable truth nor anyone elses here. i am so glad you are taking a concern in your own health. you deep down are questioning your doctors opinions because no one else knows your body like you do. it is important in this life to be like you. and me! ive been in your situation ans has to be my own best advocate and that, my dear, is what you're going to do as well.
YOU know something is wrong and needs to be addressed. Hospital staff is there to get you beyond the medical emergency ans back in your car to proceed home and that is it! NEVER an exit plan with a diagnosis, treatment plan, or anyone there who cares for a follow up. your primary care physician didnt show a concern anymore than the surgeon wanted to even know your name. this is where you bust into the room and make demands and threaten insurance companies with potential complaints if tests are not done, specialist appointments are not set up, and a case manager is not appointed to help you through the maze of medical attention. in other words, its your time to be as proactive as possible. demand your primary doctor call up the National institute of health and get you into their rare disease clinics at various hospitals around the nation. you want answers and you want treated.
i dont believe your home injury is related to the primary issue. many diseases can cause what youre experiencing and some can be fatal if not treated. so please be proactive and make those phone calls.
let us know how youre progressing with this...
lisa