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MVD

Posted , 7 users are following.

kathy75678
kathy75678

Yea, I had mvd surgery last June. It took the bad pain away from Trigeminal N. But it also leaves you with nerve damage. I can live with it though. The pain was unbeatable.

3 likes, 8 replies

8 Replies

  • marlene36342
    marlene36342 kathy75678

    Posted

    Hi Kathy - I was diagnosed with TN is 2006 and had MVD surgery in 2009.  My surgery was not successful and now live daily with chronic pain.  When you say that the pain was unbearable, I completely understand.    When my surgery was done the surgeon did find problems, corrected them but with no relief in pain.  Does your nerve damage cause you pain of any level based on a number from 1 - 10?  My pain has been increasing for the last two years but cannot figure this one out.  Best wishes.
  • john02420
    john02420 kathy75678

    Posted

    Sorry to hear about your pain.  I don't think I have TN but I have pain in all my teeth that just started all of a sudden after a cleaning and fluoride treatment at the dentist office last November.  I was doing fine before. I have been to a load of dentist, a ent, pain doctor, orthodontist, periodontist and no one can tell me what is wrong with my teeth and why they hurt when they come together and touch.  I was trying to find out if someone just has teeth pain with tn.   I went to a neurologist yesterday and was hoping he could help.  I had talked to his nurse before he came in.  He asked me if I had a electric shooting type pain in my teeth and I told him no.  It is not that type pain.  I have been reading this forum and just looking for answers.  Since learning about TN I am scared to death to have any dental work done.  Hope everyone gets better.

    • wannahelp2017
      wannahelp2017 john02420

      Posted

      John I don't think that it's all shock like pain I think some people experience a burning sensation and before my meds started working my bottom tooth touched my top tooth and an instant pain came with it 

    • kathy75678
      kathy75678 wannahelp2017

      Posted

      I had to eat on the opposite side of my mouth and had smoothies, ensure, and lots of soup. Mine was not triggered by eating. My mouth was too sore to eat. My pain did not seem to have a trigger except for lots of talking. After I had a Bad pain is when my mouth was so sore and I was afraid to eat that it might bring the pain back. Some people have the surgery twice. Do what you have to do to be pain free. Goodluck
    • Cajun9267
      Cajun9267 wannahelp2017

      Posted

      Exactly... i also feel like a pressure UNDER my teeth. Like they just want to bust out of my gums... its so hard to explain to someone that doesn't know. They just get that confused look on their face. 🤤

  • john02420
    john02420 kathy75678

    Posted

    Were all your teeth hurting like to the touch or when you put them together to swallow.  
  • wavedancer
    wavedancer kathy75678

    Posted

    Hi Kathy,

    Sorry to hear you ended up with nerve damage following MVD surgery. Can I just say for anyone who is considering this surgery, that not everyone ends up with nerve damage. I haven't. Maybe I just got lucky.

    Best Wishes

    Chris

  • colin04561
    colin04561 kathy75678

    Posted

    After my MVD, I lost feeling on much of my right side face including my tongue. Some of it returned, but most did not. It's an odd feeling, even over a year later, but one I will live with as this trade off is more than worth it.

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