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MVD operation for hemifacial spasm

Posted , 3 users are following.

Adnama
Adnama

Have returned home from Atkinson Morley, London, where I underwent the MVD Op to hopefully cure my HFS. Am delighted that it worked immediately on coming round in recovery. Unfortunately I have lost hearing in the left ear which may return if I am lucky, but I am not banking on it. Am feeling very unbalanced and a bit dizzy still, but each day I am managing to eat more and do more and I have no regrets whatsoever. It is such a relief to be free of those awful irritating spasms and I am sure that I will get used to the new sensations and feelings in my ear over time. It's not quite a week since the

operation,patience is required here! I would happily wear a hearing aid if I feel the need to. It was a risk I was prepared to take. Just so pleased and thankful that it worked for me. It took some agonising over of course but just typing this is so easy now!

1 like, 4 replies

4 Replies

  • jae49881
    jae49881 Adnama

    Posted

    Hi Adnama, I had  had MVD surgery in Salt Lake City 6 weeks ago today, unfortunately my spasms are still here and my hearing (left ear) has been affected slightly. I am finding that working 4 hrs a day is about all I can do right now because I get tired after that. My dizziness happens when I move my head too quickly. I know I am progressing with each day and I have faith that I will be healed, but I have to be honest I am so dissappointed I still have face spasms just as bad if not more since my surgery.
    • Adnama
      Adnama jae49881

      Posted

      It must be hard to still have spasms, I have to be very grateful-that I don't, despite the deafness! It is possible that your spasms will subside in time.  It took some months to get back to feeling normal, although I don't think I will ever feel 100% again.  I really hope your hearing is not too affected and you feel better soon. All the best.
  • sally44295
    sally44295 Adnama

    Posted

    Hello Adnama,

    I'm pleased to hear you are now spasm-free! The other side-effects as far as I can gather from those who have had the op will disappear in time. Who was your surgeon? I am London-based but waiting for MVD surgery in Bristol with Nik Patel who seems to be one of the best.

    Best wishes for a complete recovery! Sally

    • Adnama
      Adnama sally44295

      Posted

      Hi Sally, thanks for message.  I wish you lots of luck with your op, when do you think it will be ? I wish in retrospect I had given more time to researching the surgeon.  Nik Patel seems to have a good record.  Henry marsh who did mine is a top surgeon, but I just hope I was very unlucky to end up deaf! It is still hard to accept, but I try to forget about it.  I'm in Reigate,  it's strange that I've had two messages recently on this forum, have you joined the facebook site? It's very good. Amanda
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