MVD surgery 8 days ago
Posted , 30 users are following.
I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with satisfactory result, but gradually the injections were becoming less effective. I had my first consultation with Mr K at the NHNN Queens Square, London in Feb 2010 when he explained to me in great details about the chances of success and all the risks involved with MVD surgery. At this stage I was prepared to risk losing hearing on my left ear in exchange for getting rid of the spasms. But Mr K also mentioned the possibilty of developing bell's palsy which I thought was worst than twitching, and that it is a permanent condition. After doing more research and realised that bell's palsy is only temporary, I contacted Mr K again in Oct 2011 to arrange the operation. I was operated on Tue 3rd Jan 2012, discharged on Sun 8 Jan 2012 to continue with my recovery. I thought I was immediately spasm free when I woke up, but in fact it seems to be worst the day after. Mr K's assistant told me that the nerve may take some time to heal and it may be a few weeks before we know if the operation is successful. I was not too bothered as I have read the experiences of the members of the HFS association. I am just grateful for the skill of Mr K leaving me with my full hearing intact and no uncontrolleable discomforts other than dizziness for the 1st 3 days. Today is the 8th day post-surgery and I am off all painkillers already. The staples were removed yesterday and the incision wound feels better. I shall certainly let you know when I am finally spasm free. I will be most happy to answer questions from anybody if it helps.
7 likes, 400 replies
essyk10
Posted
chris1978
Posted
no not seen any messages amanda, or maybe i did and didnt realize.. sorry not been totaly with it as late lol
dizzyness went just recently tell you the truth, still have the odd stumble, really embarressing as i was staggering really bad, looked like i was drunk whilst walking my daughter to school, had to keep explaining to everyone... hearing in left ear still a no no but got used to that so not too concerned (least of my concerns i suppose) did mean to say i had spasms straight after surgery whilst in recovery but surgeon said he did expect that to happen whilst it all settled down, also spoke to him yesterday and now hes saying it could take upto 3 years to settle, not happy about that as he first stated 3-6 month.. just wishing this next 3 month away now so i can get some more scans done then i'll have a clearer explanation
will keep in touch hope you guys stay good and recover fully
chris1978
Posted
Roseann
Posted
I am SO sorry to hear that you haven't had a trouble-free or spasm-free recovery Chris and know how disappointed you must feel. Nothing worse than thinking you've reached the top of the hill, only to find that there's another hill up front. But, I guess the thing to hang on to is that you are considerably better than you were before the op and the op was not as hideous as you had imagined. That's the bit that I shall cling to before my forthcoming surgery.
Hope you have stay strong and stay determined to be better. And I'm sure your surgeon was right not to meddle in the brain stem, yikes!! Look forward to better news from you in the future, all best, Roseann x
Jeffina
Posted
Just want you to know I've sent you a private message on here, not sure if you got it or not?
Jeffina
Roseann
Posted
I've replied to your private message......Look forward to hearing more either via this site or e-mail.
All best to you and everyone, Roseann
phil18
Posted
Fngers crossed
YKL
Posted
Roseann
Posted
phil18
Posted
Got to be honest kind of looking forward to it as having this aint no fun!!!! The thing im not looking forward to though is the recovery but i know i have to take it easy.
Had me pre op this afternoon, fit as fiddle, so here we go.
All the best
X
Mrs_SM
Posted
Must admit I'm a bit envious that you are going to get it all over with. It sounds like they are keeping you in overnight ready for surgery first thing in the morning. That's what they said they would do at the Walton Clinic if I decided to go ahead with the MVD. Roseann - you mentioned a while ago that you would have to make a very early start to be at the hospital on the morning of your op (when it came round) and I forgot to tell you to ask them if they would let you stay the night before. It surely wouldn't be safe to drive such a long way while consumed with nerves, not to mention the HFS kicking in.
Phil, once again good luck and I'm sure we will all be thinking of you tomorrow. I for one can't wait to hear how you get on..
Sylvia
X
chris1978
Posted
YKL
Posted
Hope you are keeping well. I agree with you that an overnight stay at the hospital just prior to surgery would work better - what if the train runs late or a traffic accident causes a severe jam? Even though I had my surgery at a local hospital, I checked in the night before and had a good night's sleep before surgery the next morning at 8am sharp. And the nurses ensured that a 'nil by mouth' routine is followed from 11pm that night!
Kind regards
Leon
phil18
Posted
YKL
Posted
If you don't suffer from nausea or loss of appetite, make the most of it!!!