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MVD surgery 8 days ago

Posted , 30 users are following.

YKL
YKL

I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with satisfactory result, but gradually the injections were becoming less effective. I had my first consultation with Mr K at the NHNN Queens Square, London in Feb 2010 when he explained to me in great details about the chances of success and all the risks involved with MVD surgery. At this stage I was prepared to risk losing hearing on my left ear in exchange for getting rid of the spasms. But Mr K also mentioned the possibilty of developing bell's palsy which I thought was worst than twitching, and that it is a permanent condition. After doing more research and realised that bell's palsy is only temporary, I contacted Mr K again in Oct 2011 to arrange the operation. I was operated on Tue 3rd Jan 2012, discharged on Sun 8 Jan 2012 to continue with my recovery. I thought I was immediately spasm free when I woke up, but in fact it seems to be worst the day after. Mr K's assistant told me that the nerve may take some time to heal and it may be a few weeks before we know if the operation is successful. I was not too bothered as I have read the experiences of the members of the HFS association. I am just grateful for the skill of Mr K leaving me with my full hearing intact and no uncontrolleable discomforts other than dizziness for the 1st 3 days. Today is the 8th day post-surgery and I am off all painkillers already. The staples were removed yesterday and the incision wound feels better. I shall certainly let you know when I am finally spasm free. I will be most happy to answer questions from anybody if it helps.

7 likes, 400 replies

400 Replies

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  • YKL
    YKL

    Posted

    Good Morning Phil,

    Good to hear that you are improving daily. I felt better after the staples were removed on day 7, so there is a good chance that your headache will disappear too after that. The dizziness may last a bit longer going by my own experience.

    All the best!

  • phil18
    phil18

    Posted

    Yep, staples come out on monday, which for some reason i am not looking forward to!!
  • YKL
    YKL

    Posted

    I was anticipating it to be an uncomfortable experience too, but it turned out to be completely painless as confirmed by a few other mvd patients here. Remember to ask the nurse to keep the staples for you as a souvenir! All 15 staples came off within a minute and a half, and I could hardly feel it as the skull was still numb at that time.
  • phil18
    phil18

    Posted

    Thats reassuring, thanks for that
  • Adnama
    Adnama

    Posted

    Just to confirm that having the stitches or staples out is really quife painless.
  • phil18
    phil18

    Posted

    Yo,

    Well its day 8 now.

    Still have headache but dizzyness is getting less and less. Still have some spasms, mainly under my right eye, but this gets less as the day goes on.

    So all in all goin well and the suns out which helps!

    Cheers

    Phil

  • Roseann
    Roseann

    Posted

    Can't imagine how happy you must feel Phil. You're well on your way to recovery and with luck those headaches will soon be gone too. Good luck with the staples - I'm told that, as Leon has said, they are the least of the problem. Enjoy the sunshine...... we have a spot of rain in Hampshire! All best, Roseann
  • phil18
    phil18

    Posted

    Well, day 9 now.

    No headache this morning and had many hours of being spasm free yesterday. This morning a few twitches but things continue to improve.

    All the best

  • Roseann
    Roseann

    Posted

    Allelujah for no headaches! I've been twitching all night long and have had 3 hours sleep. Not a happy bunny today................Enjoy the sunshine and the lack of pain Phil, and thanks for these daily updates which are really useful to us MVD 'virgins'.

    Cheers, Roseann

  • phil18
    phil18

    Posted

    No worries, ill keep posting until u get bored of it all lol.

    Sleep used to be a problem for me, i tried lying on the "flick side" but the noise in my ears was horrendous. Hopefully i will be over soon for you.

    Cheers. Phil

  • phil18
    phil18

    Posted

    Morning all.

    Day 10 and all is good. Took the bandage off last night to reveal 22 staples!!! Quickly put a new one on.

    Headaches have all but gone for the first time in nearly a year which is a big relief. Spasms are still there but still improving.

    Staples out tomorrow.

    All the best.

  • Roseann
    Roseann

    Posted

    Evening Phil

    Probably not the best 10 days of your life, but it all sounds hopeful up ahead. Bet the wound looked a bit scary, but you sound to be healing really well. Good luck with having those 22 staples removed. In the meantime, don't go near any magnets. Keep keeping us posted please.

    All best, Roseann

  • phil18
    phil18

    Posted

    Afternoon,

    Had the staples out today and nearly passed out. This was the worst bit of the whole procedure.

    Any way, headaches are all but gone, spasms are just a small flicker under my right eye but still feeling tired.

    Gonna have a day at the cricket tomorrow (aus vs nz) and see how i get on.

    All the best

  • Roseann
    Roseann

    Posted

    Yikes, that sounds horrid Phil. I shall remember to drug myself up before my turn comes to have the staples out!

    Have a great day at the cricket tomorrow, beats working eh? And now you KNOW the worst is over.

    Take care, Roseann

  • bazzer
    bazzer

    Posted

    Hi all

    sounds like all is going great for you Phil - really pleased for you!

    Getting my (22 too I think) staples out was the least traumatic of my expeience so count yourself very lucky!

    I was reaslly disappointed at first because I suffered HUGE headaches for a long time and the spasm actually got worse immediately after surgery.

    5 months after surgery my spasms suddenly reduced and then within a week thereafter ther vanished altogether.

    After the first 3 months or so I was really fed up with all the pain I had endured and then for it to have failed anyway!

    Now - 10 months later I would thoroughly reccomend to anyone to go through with the op - worth all the pain

    best wishes Barry

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