MVD Surgery Scheduled

Hi hsisk - I just read a response from one of the group members and I feel I need to explain a couple of inconsistencies.  If you would like to PM messsage, I would be more than happy to explain.

Hi, I am sorry that you felt and think I am telling you what to do with your life.

I think there are misunderstandings and the way that I  asked you, it was wrong.

I know after all years living with this horrible pain, each case and person are different from each other.

To do what do or not do with your life is that's up to you, AND, I NEVER INTERFERCE IT.

All I wanted to say, that be careful, do something with good research that after,  you do not regret that.

Again, I am sorry you felt that way. I am in Medical field and highly educated in three different area, again what I am doing, or what my job is,   is not really important,  my meaning is, I  am not an ordinary person just say something, randomly.  I was, somebody 20 years ago, that desperately looking for something that, make me free of the pain, and I went under this surgery, and you are right about it if mine did not go well, it does not mean, yours go wrong. 

Another thing, when I look at your medications that you are on, 

I am sure, you aware all of them have the side effect, and even though these medications, all are pain relievers, but sometimes, when we take all together, their side effect works the other way around, I mean, make the pain worse, you better search, and you will find that I am right, and  I hope, you feel better.

 At end, Generally, if, we are coming to these sites and ask each other's suggestion,

and group give us some idea, you better hear those, and do not mix it up, with something else.

Otherwise, do not come to these sites, if you can not understand worriedness. and be mean and disrespectful. 

I did not decide for your life, do what ever you want to do, it does not matter for me. I am sorry if you felt that way. 

Good luck.

The doc should know if there's compression on the nerve by looking at the MRI. I had the surgery 7 weeks ago. The pain is gone. My surgeon also did a rhizotomy ablation which has left numbness on the side of my face. It feels weird but better than pain. I'm also having some double vision on that side, but hopefully that should go away in time. Just have to be patient. My post op experience was harder than I expected. I wasn't  fully prepared, but I'm feeling well now and the pain is gone! Good luck and keep us posted. I hope this has been helpful, and hasn't made you more nervous. 

Hi hsisk I was told the same thing by my surgeon - that it was unlikely anthing would show up.  By no way does this means there are no problems.  I had a few and the surgeon was able to fix.  You will, in most likihood wxperience nubness - I certainly have.

 

Hi hsisk34

Reading your post was just like I had wrote that myself. I am doing the surgery after 5 years of pain and suffering to the highest degree, where it's changed me as a person forevermore. In a negative way such as anxiety levels are through the roof, I'm paranoid sometimes at every moment of the day (if I do this I'll I have pain.. I can't eat I'll get pain.. I'm getting to hot I'll get pain) when I'm having some of my darkest days I can't eat or speak or even more my head or body and if you want to put a little silver lining in there in a positive way, where I know how strong I am.

 I am on very high dose on medication where I am unable to work 1200 msg Lyrica. I am soooooo ready for this surgery it's my finally hope to have a somewhat normal life. So don't be scared I'm sure you have the best doctors. I'm very positive about this surgery even tho I have read other post of the surgeries not working for them, but if I didn't have that mind set going into it, I don't know where I would be mentally to be honest even know I am being strong and holding on with everything I got don't know how much fight I get left. So why I wanted to post was to give you some of my positive, some my courage & most importantly the absolute best of luck as you are having your surgery before me mine is on the 10th October. 

Hi, hsisk24, I hope your surgery be very good surgery, and the out comes be wonderful, and you will get free of pain. 

I know this pain, is out of control and hurts so much.

I am positive for your out coming surgery when I've done my surgery, it was new surgery for TN and after all these years PASS, Right now, is going to be more neurosurgeon with a lot of experience about this surgery. And they know what they are doing.

So, Do not worry, you are going to be fine, and I wish the best wishes for you and your family. Take care.

Please let us know when you wake up. Thanks. Maryam

My 20 year old daughter was dx with TM and had a MVD 3 months after diagnosis.   The surgeon has done over 1,000 of these surgeries and another 1,000 rhyzotomies.  As far as your worry, did you have a high resolution MRI?  My daughter had one with and without contrast (both sides).  When we met with the neuro surgeon for the first time it was required to have this so he could review it before making a plan.  He was actually able to show us the area where the trigeminal nerve exits and we could easily see there was a clear difference on the left vs right.  One side was clearly impinged.  So, ask more questions.  He may KNOW and be able to show you that there is a clear anatomical problem, that seems to be one of your major worries.  While the image we had showed a clear impingement it was only after he went in that our surgeon found BOTH an artery and a vein leaning on the nerve.  

As far as the recovery: you should have a clear picture of what that should be like from your doctor before surgery, many surgeons are extremely busy but in my experience good practices have a nurse practitioner who can answer basic questions as to what to expect from after surgery.  Our experience: my daughter went in on a Saturday for am surgery, spent the night in the neuro ICU with a 1:1 nurse who did hourly neuro checks, on Sunday was transferred to a regular surgical unit and was discharged on Monday.  She stayed home with us for about 2 weeks (went to the hospital for a check -up) and then flew back to Wisconsin began to taper the medication she was taking and slowly resumed work.  She was not able to go swimming, drink alcohol, or for the first 6 weeks lift more than 10 pounds.  The surgery was the first of May and she came here this week to her final check-up.  I can harldy see her scar, she is working 30-40 hours per week and is now on no restrictions and will be backpacking around Europe with her BF for 3 weeks.  She has had a few episodes of pain since surgery, but not as long, frequent or as intense as before.  She seemed to be most affected what there was  rapid a change in barametric pressure and the weather was rainy.  Hope this has been helpful.  Don't rush into surgery until you have your questions answered.

Good luck.