My 13 month old was diagnosed with hsp. Any advice?

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Hi everyone. My 13 month old daughter was diagnosed with hsp two days ago. She has this awful shocking purple bruise like rash that covers her lower limbs. She couldn't walk for 24 hours but now she can. She was in lots of pain but now it seems to come and go. She has been constantly unwell with chesty/snotty virus' almost all her life. Does anyone know if it's related?

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  • Posted

    Hi,

    My daughter is 8 years old. I have written about her in the past. She was diagnosed with HSP this June after a string of upper respiratory infections and tonsillitis. The cause of HSP is unknown however, symptoms are relatively the same. Your daughter was having difficulty with walking as mine was due to inflammation of the joints. It will progress and the symptoms are sometimes frightening and very heart breaking. Keep in mind even on days when she seems well. Hydrate hydrate hydrate. It may affect her kidneys. Allow her to nap over fatigue may trigger a new round of symptoms. Avoid excessive outdoor exposure and ibuprofen. Tylenol seems much safer for pain. Always consult with a Doctor. However, keep in mind this rash affects her insides as well. Gentle bland foods. May God speed her recovery. We are still dealing with it roughly 7 weeks later.

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    • Posted

      Thankyou so much for your insight and sharing your experience. We are only a few days in. She is so young so doesn't understand rest or keep drinking. She is refusing most foods and fluids. Her formula and a little water is the only thing more or less she is taking. her rash looks like a very deep bruises up to her knees. Looking back she also has ulcers on her tongue leading up to it along with her infections. It is very scary.... hoping she won't suffer all her life and it will be just a one off episode.

      I hope your daughter also has a speedy recovery.

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    • Posted

      Hi Micheal,

      When my daughter overly exerts herself she gets symptomatic. Her rashes reappear, albeit milder than before. She gets black bags under her eyes, sometimes joint pain. So although she is eight usually the age when kids no longer nap. I allow her to nap in the afternoon for at least an hour. When she is stubborn and not sleepy I tell her she must lie down and read or just rest quietly for an hour. I hope thats a bit clearer.

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  • Posted

    Hi,

    When I was 11 I was also diagnosed with HSP. I had an awful rash and purple bruises on my lower body and couldn't walk aswell. When I went to the hopsital the doctor had told me that hsp is normally a crash of the immune system. I had tonsilitis a month before and they said that they were 90% sure that's what caused my hsp. I imagine that your daughters virus is what caused hsp. I am 14 and last october they told me that they think i have recovered with no lasting damage. My advice is drink lots and lots of water avoid salt and don't have ibuprofen it's supposed to make it worse. Keep her warm especially her kidney area, water bottles helped me alot! I hope your daughter gets better and recovers fast. smile

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    • Posted

      Hi Charlotte,

      you are very brave and strong to be able to experience all the heartache hsp

      causes. My daughter is also suffering from this. Your advice is spot on. Hydration

      and avoiding Ibuprofen is crucial. Another advice I would like to give is to watch

      your iron levels with all the blood be drawn alot of people become anemic and iron

      rich foods and supplements need to be taken to prevent fatigue and worsening symptoms.

      Citric foods and juices would also cause abdominal pain in my daughter. She has had this illness

      for approximately 8 weeks now. She seems to be recovering, thanks be to God. I pray she stays well.

      I think being home during the summer has helped her to recuperate. I know everyones time table is

      different in regards to healing time. I pray all affected by this recover quickly.

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  • Posted

    Hello I was wondering how your daughter is now? My 15 month old caught has HSP and is passing bloody bowl movements (2 months since diagnosis) we go to a new specialist on Nov.21st I'm so uneasy and worried since she can't exactly talk and tell me what's wrong her stomach is hurting her as always and asides from high protein they havnt detected any kidney issues hoping it stays this way I'm desperate to find information in toddlers under two with HSP since it's a rare age to get it. My daughter never had any issue as little as a runny nose prior to this diagnosis.

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    • Posted

      Heavens!!! It’s so hard to have sick little ones. My son was diagnosed at 8 years old with sever HSP. He has lasting arthritis, kidneys damage and usually has a rash somewhere on his body at all times. He was in the hospital for a week and then at home for 7 weeks in a wheelchair. I ended up taking him out of school until he was well enough to go with out the wheelchair. Sounds horrible right?..... So he’s 19 now and even with dealing with all of this if you looked at him he looks and acts normal. With the arthritis and him being athletic it’s best to keep moving. Getting started is hard for him, he has to be at work by 5 am so he gets up at 4 for a hot bath with Epsom salts. It took about a year before he stopped peeing blood. He does have kidney damage that has not progressed so he knows he has to drink water and to not drink  alcohol. He did try it one time and he was very very sick for about 3 hours then had pain in his kidneys. He learned his lesson. Sometimes I’ll have him drink Pedialyte if I feel like he’s dehydrated the other thing is drinking water with a high pH level. There’s a couple reasons that a child could be peeing or pooping blood if they’re peeing it’s usually coming from the blood vessels in the kidneys or tubing or bladder anything below the kidneys. If they are pooing blood  it could be from their veins in their G.I. track however there is a possibility of having their G.I. track blocked and that could be causing the bleeding. That is one thing my son did not have, I know other people have had their children have part of their G.I. tract blocked and they were able to go in surgically and fix it with no further complications. So my advice to parents that are going through this right now from my experience is; 

      1. Lots of baths during the day. 

      2. Get a wheelchair if they can’t walk 

      3. Water with a high PH Level 

      4. Let your child dictate their activity, my son would wake up feeling good and with in an hour he was down. 

      5. Massages, just light ones with your finger tips. 

      6. Parents, your children need your patients and energy so let the doctors worry for you. 

      Sorry if there are spelling mistakes, it’s 2 am.  I was researching if there’s any new information on HSP, unfortunately it’s not much different from 10 years ago. My thought and prays are you you all. 

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