my 13 year old grandson with Hemiplegic Migraine

Good job! All those things are great. Try some CoQ10 also. Additionally, track everything he is eating. Some food triggers are all natural and healthy like bananas and avocados, yogurt, yeast extracts like marmite or seasoning packets, anything with tyramine which occurs in ripening fruits and veg. Caffeine chocolate, cheese. Food trucks goers are abundant!

dear Edwin 

Your grandson is blessed with a loving grandma , good for you challenging propranolol .Ive been HM and Suna many years now but I have also been a teacher a lecturer of those both children and adults with learning difficulties , many doctors prescribe drugs for valid medical reasons with very little understanding of what effects those drugs can have upon the child teenager or adult.I had propranolol and came of it within weeks because I could not function neither did it help my HM similar to your sons but on the left side with major paralysis.What you are doing is the beginning to finding the best treatment for your grandson.It is an upward battle many doctors have little understanding of HM let alone seen it or been honestly truthful about understanding the drugs they prescribe the good ones refer you to a specialist.Research those in your area, research their portfolio  look on line.

Your right in not letting your grandson be Zombiefied .Ive tried to work with many children and students who have been out on drugs primarily for epilepsy that have no positive effect upon that specific child's condition except Zombiefied them which effects their learning comprehension and retention it affects all areas of their learning and most teachers are sadly lacking in the skills time and knowledge of what and what not is appropriate in teaching practise and support.

There are non 'drug' medications ie Feverfew , doesn't work for everyone and dosage is trial and error.Always check whatever you give with the professional you really trust who knows what their talking about.Ive been in hospital and A&E many times being so called treated by those with little or no understanding of HM.You and your children need to be your grandsons protector defender and informer to the medical profession.Learning yourself is always the best step then you educate others and your grandson.Hes at a tough age my heart goes out to him.But tell him there are medications that can control his attacks , diet,and activities hobbies etc all help.Having a right attitude is essential being positive throughout even when it's tough at school is paramount in avoiding disaffection towards learning. Educate his teachers they probably have little or no understanding of HM.Refer them to the site The Migraine Trust.Every year there are events activities and advertising posters .I handed some out to medical surgeries, schools and my church .Very little is known or understood by the general public and sadly the same in the medical profession .Text book I Know quips are no use at all when dealing with and helping someone during an attack and afterwards.

HM affects the lives around the sufferer .I don't know where you live but there are centres of excellence in neurological care and understanding you can get referred to for private consultation and NHS consultation.It took me three years till I found Professor Goadsby at the UcL London deny Neurology and neurosurgery.He has now left but there is a doctor there I totally trust .dr Paul Shanhan .hes on the web so are his colleagues.There are others like him with various practises towards HM .Dont settle for treatment from those that do not really know or understand HM.Your grandson deserves proper treatment from professionals who really know their stuff and have an understanding that just dashing out another tablet prescription is not the answer.If the judicatory would allow I would offer you my contact name and email.I have taught for nearly 15 years all ages all capabilities up to degree across the board.Maths up to basics of year 8.

Whatever your son has a passion for in subjects at school encourage him with those.ie arts,film,music,history,geography,languages sports English or maths.even sciences astronomy the law,IT.I struggled to get two of my four girls into support for severe Dyslexia they are now post degree independent makers in the film and craft industries .Whilst you and his parents search for the best care he can recieve on the NHS (you can pay for private consultation and then go back to the NHS for treatment) encourage him in his hobbies interests and strengths.Good luck and all my best wishes for your grandson.If I can help in any way please just send me a message , judicatory how does this operate ? no charge my help is free willing given because I and my family have been where you are now.