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In July 2016 my daughter and I took a 12 hour flight and upon arrival she collapsed! We thought she was just feeling weak, so thought nothing of it! She kept complaining of shortness of breath and chest pressure and we thought it was a cold coming! 7 days later she starts perspiring and then collapses again with umcontrollable heart arrhythmia! Taken to hospital they did a CT scan with contrast and could see two clots in the entrance to her lungs! We could not believe this! A team of doctors including an haematologist started treating her with heparin injections and after 10 days in intensive care she was ok and treated with Rivaroxaban for 6 months. They performed various tests to find out the cause of this as they have never heard of a 14 year old healthy girl with PE! All tests came back negative! Upon our return to the UK, 2 months after her PE, Great Ormond Street Hospital started a long investigation and after one year found no underlying problem with my daughter and we still don’t know, apart from flight, what caused her PE! The anticoagulation was horrendous and she felt quite unwell and would bleed terribly during her periods, which was very scary! She has been psychologically scared as she is always scared of another PE! She was an ice skater and had to give it up, also devastating! I must say that since then she had issues with heart arrhythmia once and was admitted to hospital and no clue as to the reason of it! She now has issues with her breathing, lack of air, now and again, which is also worrying for all of us! The doctors, at the time, told me that part of her lung walls had collapsed due to the PE so it makes me think that this is causing her breathing capacity! It is a horrible thing to go through and I feel for everyone who has had a PE! We still do not have a cause for hers, which is even more terrifying but we try to live with it and deal with it on a daily basis!
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