1. Community
  2. Blood & Immune System
  3. Henoch-Schonlein Purpura

My 15 month old was diagnosed with HSP in october2017, anyone else experience this so young ?

Posted , 3 users are following.

kayla22924
kayla22924

My 15 month old was diagnosed with HSP it has continued to get worse over the course of time, im hoping someone that has gone through this with their little one can give me any advice as to what to expect and look out for. She seeing another specialist on Nov.21st. Im broken hearted watching her go through this the doctor said this is the youngest case shes seen of HSP and my daughters never been sick non even a runny nose since she wad born.Thank you smile

0 likes, 4 replies

4 Replies

  • Anonymous111
    Anonymous111 kayla22924

    Posted

    Hi Kayla 

    15 Months is very young to develop it?

    How was it diagnosed - did she get the purpuric rash?

    Is she being given any treatment?

    • kayla22924
      kayla22924 Anonymous111

      Posted

      Yes the rash is covering her body now she is starting to bruse around her ankles which is something I will update my doctor on Monday when we go for a platelet and urine samples. She's been diagnosed and seen by two different speacalist due to the first one not having any experience with it in a child nearly as young as her which is the reason I'm so concerned and desperate to find someone in this sutuation, I won't know what they want to do till I see the new speacilist on the 21st she has bloody stool and protein level is higher than normal so they have had me in several times a week for urin samples (which Is very difficult to get from a 15 month old and highly uncomfortable for her due to the way they have to get the samples) I still can't wrap my head around how she could have HSP when she's NEVER has something as little as a runny nose.

  • zuzana76335
    zuzana76335 kayla22924

    Posted

    hi we have the same problem , my doughter is now 18months old and we spent 12 days in hospital now with this diagnose sad also never have been sick no problems till this HSP sad she haven’t renal or another demage only rushes on skin (many and uggly ) now she have corticosteroid prednison for 6 weeks now it is 2weeks after start this treatment and old rushes go away but new one come sad ( they are smaller as it was without treatment) on 11.january we will go to control to reumatologist and in our country we must be under doctor control every 1-2months ( it means urine etc samples  which as firt can show you hidden problem ) 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.