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my 4 year old son

Posted , 3 users are following.

carrie05610
carrie05610

My 4 year old son suffers with Henoch schonlein purpura and I can't seem to get any help he suffers with tonsillitis as well my gp as told me they don't no any think about it and don't seem to what to help me I have had a go at them told them and told them I feel he's being pushed aside because they don't no how to treat him I looked up that his urine she be checked but they won't gave me the dipstick to test for blood they said they don't no what ones to gave and for me to bye them online I am so worried he as had so much time of school and starts big school in Sep I what to no as much as I can about it thanks for any help you can gave thanks.

0 likes, 4 replies

4 Replies

  • janechloe
    janechloe carrie05610

    Posted

    Hi I totally understand where you are with this. Please push to get him to see a specialist in vascular/ immunology. You can't leave it to your gp. Where are you in the uk ? I have and am going through this with my daughter,, she is 19 and had hsp since 15. we went to addenbrooke's Cambridge today, but I am not sure they see children. I do know you must push your gp to get him into a specialist. They know exactly what to check,, bloods ect and be more understanding regarding tonsills. Did your son have tonsillitis recently?

    • janechloe
      janechloe

      Posted

      I do believe great ormond street have clinice regarding hsp.

    • carrie05610
      carrie05610 janechloe

      Posted

      Hi thanks we are in bucks yer he suffers with tonsillitis he's seen ENT waiting to see them again hopeing they take them out its I feel not getting any help with this eveythink I no is what I found out online as my gp don't seem to no any think I am seeing her again Tom going to push her to refer him to hospital thanks for your help.
    • janechloe
      janechloe carrie05610

      Posted

      We saw a specialist today at Addenbrooke's and they have strongly suggest to take my daughters out as she suffers from tonsillitis. I have / was far to obliging with her gp.

      It's only today after I got her referred to a specialist that I have realised this.

      she's had hsp persistently for 3months, even the gp monitoring her they have chosen to ignore all the alarm bells with the condition.

      Have a nose at dr david jayne....Addenbrooke's. I'm not sure if they see childr, but have to emphasise an amazing team. Please push for great ormond street. I have read they definitely see children with hsp.

      I totally understand your I have been sick with worry regarding my daughter.

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