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My daughter who just turned 5 in Sept was diagnosed with HSP on Sunday (a couple of days ago). It started the day after Halloween. She did take a fall on our deck earlier that week and when her feet and ankle started swelling up, we thought it was a fracture or sprain and took her to the hospital for an ex-ray. The ex-ray didn't show any fractures, but they did put a cast on it just in case due to the ex-ray wouldn't show any torn ligaments. A few days later the other knee started swelling a bit (not excessive) and then a rash appeared on her foot and ankle and butt. She also complained that her stomach hurt off and on and a headache off and on. She also wouldn't walk as she said it hurt. So I started looking up the symptoms online. The one thing that came back was HSP even though I've never heard of it before.
I called the doctor to get her in and my doctor was away and another doctor was on call. He said she was just afraid of walking and we just had to encourage her to do it. Also the rash he chalked up to heat rash as she was sitting a lot and not moving around like normal (she is a very active kid). I insisted to having tests done even though he said it was not necessary and would come back negative.
One test that was done was a throat culture and it came back she had strep throat. But I didn't find out about this until we went to the hospital again 2 days ago (a week after the first time), as her rash was more prominent and her hand was now swelling up. The doctor there reordered a blood test and urine test as well as an ex-ray of her stomach. There was a pediatrician at the hospital at that time and she came to examine my daughter and she is the one that confirmed it was HSP. No one I saw ever saw it before, but the Pediatrician said she sees 4 cases every season. She said it may reoccur and be ongoing for the next 3 months with good days and bad. I kept my daughter out of school (she is in preschool) last week and the Pediatrician wants her out this week too.
Her cast came off at the hospital when she was diagnosed with HSP as obviously the swelling had nothing to do with the fall.
My daughter seems to be in good spirits for the most part in the mornings and first part of the afternoons, but towards late afternoon to evenings, she seems to have the worst of it as her mood changes completely opposite to what she is normally (very cranky and uncooperative) and is very touchy. Although a few days ago, it was all day from the time she got up to the time she went to bed. So I think the Tylenol is working for the pain. She is also on medication for the step throat for 10 days. The rash seems to be fading some as well and not reappearing elsewhere. Although I am aware this could happen with this disorder.
This was a total shock to us as she is a very healthy child and very active. For her not to walk due to the pain or not to want to walk, is totally opposite to her personality. I have to carry her everywhere. Sometimes she will try to walk with help from us, but other times she just won't try saying it hurts too much. The Pediatrician says she should be walking again soon and wanting to walk.
I am worried it will affect her kidneys as her urine test had blood in it. Everything I've read says most kidney issues will pass with the disorder. I am also concerned that she may have problems with her joints after the disorder is past such as arthritis.
I found this site while researching HSP and wanted to share this. I welcome any feedback or suggestions on getting through and coping with this situation as I'm very concerned for my girl.
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