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We have recently been told our full of life, beautiful little boy has been diagnosed with chiari malformation, which has caused damage to the spinal column causing a curve to the spine. which I discovered 11months ago and he has also been diagnosed with scoliosis. We have been told surgery will be going ahead and hopeful for january following more tests and a further MRI. Our surgeon has told us a plate fitted to the skull to expand the area to support brain and maybe more effective than removing the bone at the top of the neck, wanted to know if anyone has has this surgery. PLEASE message me as would love to hear your thoughts and experience as in a desperate place at the moment.
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