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Hi all, I'm new to here and just looking for some reassurance I guess. My little boy was diagnosed last year initially with easonophilic oesophagitis after having an endoscopy and 24hr ph study (ph study wasn't accurate as he was so sick all the time it was in).
He had always suffered with chest inf as a baby and as a result had many stays in hospital and was even on long term low dose amoxicillin. As he got older the chest infections got fewer and vomiting took over. In a normal day he would be sick upto 6 times, most of these episodes were over night. We decided we needed listening to so ended up paying privately as I had an idea that it was reflux due to the cough that would start as soon as he lay down, this wouldn't subside until he'dommitted. We wanted to have it sorted before he started school to avoid him being sent home all the time and missing out.
The consultant prescribed him some meds to help but quite quickly decided that it was reflux and not EO. We then commenced giving Gaviscon Infant x3 daily and have been for the last 18 months with really good results. He is only ever really sick now when he has a cold and is congested. I'm probably very wrongfor doing so but we stopped seeing the consultant as each time we went he seemed to say there was another diagnoses. My son has a very small (pea size) hernia visible on his upper tummy (between his lower chest and upper tummy) which was diagnosed as a baby, our GP acknowledges and so did the consultant once. On subsequent visits he's saying it's not there?!? He then said we were to wean my son off the Gaviscon and if the sickness came back then he would do another endoscopy. Surely if the sickness returns it shows the Gaviscon is working like we tell him it is and that there is no need to do another procedure. My little boy really didn't cope well with the general anaesthetic, he was so poorly with sickness immediately and therefore didn't eat, hence the reason the ph test wasn't accurate. Although you could still see there was a lot refluxing on the graph from the ph study.
Forgive me for rambling but we are not sure now if we can just continue as we are with the Gaviscon as it works so well. Does anyone have any similar experience. It seems very difficult to find anything on reflux in children, it's all babies. Thank you in advance for taking the time to read this ramble, it's really appreciated xx
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