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  3. Henoch-Schonlein Purpura

My 9 year old daughter had had this 8 months

Posted , 2 users are following.

jowelly
jowelly

I'm looking for advice my daughter had been diagnosed with this condition since June but been suffering since January , she has had such a bad episode this time it looks like she is going to have scars , She has been referred to a dermatologist now and waiting to to them . Will she out grow this. I am really worried as it is really affecting her confidence x

0 likes, 2 replies

2 Replies

  • claire411
    claire411 jowelly

    Posted

    Hi jowelly, 

    My son has just been diagnosed with hsp too 😔 I took him to my gp and we got referred straight to hospital and they thought at first it was either meningitis, blood poisoning or leukaemia  The only information I have on this so far is that it can  re-occur and it can take weeks to months to get over we've been allowed home today and a nurse is visiting us tomorrow to give my son some more antibiotics then we have to go back in on Thursday. 

    I was just wondering how your little girl is doing? I have a website with more information the doctor gave me it's

    Www.infokid.org.uk/conditions 

    • jowelly
      jowelly claire411

      Posted

      Hi Claire , she's getting there, she hasn't had any new spots for about 3 weeks , however still

      Suffering headaches and tired a lot. She's seeing a dermatologist in a few weeks as the rash was so bad it's left her with scars . It's awful to see her like this and the fact there's nothing they can do is so frustrating. X

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