My AAA
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I was diagnosed two year ago after having a ultrasound for an angiogram. I have has further ultrasounds over the last 18 months. I had never seen a doctor at the hospital so asked to see one. Last Tuesday went see the consultant who apologised for me slipping through the net and not seeing anyone and also missig the scans, I was sent for a CT scan there and then. After the scan the surgeon told me it has grown to 8.8 and that due to the state of the aorta he couldn't operate so went home with a death sentence hanging over me. I am 69 year old women and am really worried.
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PetuniaGirl Podline
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I don't know if there was a specific reason why whoever told you that??
At this size, of course it is very thin and fragile...but all the more reason to move you to the express list!
My TAA was 8cm...on the aortic arch...
When I was first diagnosed by my local area hospital and their cardiac physician/surgeon, ...he sent me for an angiogram to ascertain the condition of my heart and whether it needed any repairs like bypasses before proceeding with the aneurysm repair...
The Intake Surgeon refused to do it , on the grounds that he'd have to go thru the area of concern(the aneurysm) to get to the heart and figured that if i was going to have the surgery anyways, that I should have the angiography done AT THE HOSPITAL, where they specialize in TEVARS ! He wasn't object to the angiogram itself BUT felt that I should have it done AT THE HOSPITAL where they'd be prepared to handle my TAA, should something go wrong with the angiogram...
I was referred to two different University Hospital Clinics....one was the Vascular Team in London, Ontario Canada and the other was in a Toronto Hospital where I ended up consenting for them to take on my case. The Team that took on my case there, consisted of BOTH a thoracic cardiac surgeon AND a vascular surgeon...plus there were other cardiac doctors and other team members that conferenced at meetings to come to a best decision, given the size and area and the other anomalies I had, which complicated my procedure.
I wasn't having any life threatening symptoms, thankfully...and they allowed time to order in a "low profile" custom stent ...the low profile, meaning that it would be one for a smaller chest cavity ...smaller than average I guess...
Get them to refer you to the hospital(a) that can handle your case ... Insist on them to send an immediate, urgent referral. Maybe find out where you should be going and get in touch with the hospital rep there that will help channel you in the right direction??
You're young!
I was approaching my 59th birthday...
My first cardiac procedure in the same arterial location was forty years before! It was an open procedure!
This time I had both an open surgical procedure AND the Endovascular ( closed) procedure.
I've heard of very complicated lengthy EVAR/ stents in the Abdominal/ thoracic areas ...successfully performed with good outcome!
Do you have any pain or discomfort of any kind?...
Please get your referral(s) ASAP...
Get someone to help you with that process!
Good luck and keep us posted!
Joanne
PetuniaGirl
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I was shovelling snow up until I found out about my latest diagnosis...the grapefruit sized aneurysm ...near my heart...and pressing on my nerve for the vocal chord and my esophagus!
I was getting laryngitis and coughing way too much...that's why I finally went to see my new family doctor...thankfully, an open minded/ approachable & alert physician...
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BillyFriend Podline
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I'm not sure why the consultant is reluctant and talks about the state of your Aorta, but the size alone is not a reason to send you home like that. Your condition is potentially very critical so seek advice from other specialists as a matter of urgency.